Worried & Confused, Please help):

[Fayth_Fel]

Hi everyone,

I need your opinions on this!

I heard that endometriomas grows really quickly, but my gynae mentioned that most of the time it doesn't cause a drastic change in size in most women.

So I am pretty confused, I am not advised to go for surgery at this age and I am not under medication. What can I do?

[JulesUK]

It really does differ from person to person. For some it grows fairly quickly others can go for years and years without a problem. How were you diagnosed? Have you received any treatment or procedures at all? x

[Fayth_Fel in reply to JulesUK]

Hello.

i was diagnosed with anemia and the doctor suspected that it's due to excessive bleeding during menstruation. They did an ultrasound and that's how they found out that I have bilateral cyst. I am not receiving any treatment at the moment. They just placed me under observation for another 9 months. I am so scare right now, 9 months is way too Long.

[ThaliaThalia]

Are you in a lot of pain? If so, you'll need another scan. x

[Fayth_Fel in reply to ThaliaThalia]

Hello.

I don't experience a lot of pain just a little discomfort during menstration. But the worrying thing is that my cyst are quite huge ):

[ThaliaThalia]

If you're not in much pain and the scan looked okay, they might view surgery as unnecessary stress for you.

What size is the cyst?

Mine (satsuma-sized) was removed because the pain was affecting my quality of life. My mum's (grapefruit-sized) was removed because it was causing her too much pain.

What is it specifically that you're afraid will happen? I might be able to better help you if I understand the basis of your fear. x

[Fayth_Fel in reply to ThaliaThalia]

Hello Thalia,

Thanks a lot for sharing your experience with me. They mentioned that surgery may not be the best option due to my age.

I have got a 5.4cm and 4.4 cm cyst. They mentioned it has to be over 5 cm In order to proceed with surgery.

I am just afriad that the cyst may grow/ burst after each menstrual cycle and because I'm not under any medication to suppress it. And I would have to wait for at least 9 months before the next scan. It's the fear of not knowing what might happen within the 9 months):

[ThaliaThalia]

Thanks for helping me understand. What age are you?

I've had a ruptured cyst. If you notice any change or worsening in pain, get to A&E and let them know you suspect a swelling/rupturing cyst. The hospital can then scan you and / or remove it.

I recommend having codeine in your handbag at all times to give you a feeling of security that if any serious pain hits, you can reduce it. Have hot water bottles in the house, too.

I empathise with what you're feeling. I was really scared throughout the first cyst process (the one that ruptured).

You'll know if something changes. I was able to get to A&E days before mine burst. It was only because a breathtakingly incompetent gynae sent me home with a misdiagnosis that mine did burst.

If you think the worry isn't going to go away, private surgery might be worth it (if you have spare cash). Another option is to explain to your G.P that you're afraid and see if they'll write a letter to the hospital requesting surgery (if that's what you want) or perhaps more regular scans.

I hope this helps. x