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Endometriosis UK
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ENDO experiences

Hi everyone I wonder if anyone can give me some advice. So my history is that I was diagnosed with Polycystic Ovaries when I was 16. And now at the age of 22 I was also diagnosed is Endo last year. I had a lap to determine my diagnosis which confirmed my fears. I am currently on the Pill which I take back to back for 3 months to minimise my pain. However, the pain has started again since my operation but it is now ten times worse than I ever suffered, especially on my pill free week. Since then i suffer from severe depression, i am on antidepressants and am having therapy. My libido is zero and my relationships are breaking down. As a result I am about to have the artificial menopause injection on Monday, unless I change my mind by then. I am driving myself insane around deciding whether to go for it. I don't know whether I want to pump my system with more hormones and drugs. The side effects etc...

I want children more than anything and feel like everything is against me. Can anyone give me their opinions on what should I do? What are your experiences of the menopause treatment? And generally Endo? Have you had children? How are you managing it?

Thanks in advance.

1 Reply

I am in the same boat as you hun, I am 21 and have tried everything there is to try. I was given prostap injection in January, the 3 month one and I've had 2 so been on them for 6 months and they are amazing. I have been pain and symptoms free for 5 months. Unfortunately I am having a hysterectomy this year. I am going to sort it out with my consultant on Tuesday. I myself have always wanted children and it is hurting me so bad that I can't. Everything is a mess inside me and it's destroying my life, I lost my job, I can't do anything, im in pain all of the time. It's horrible. Unfortunately I'm gonna sacrifice my motherhood because I need my health and I want to get somewhere in life and if there is an opportunity to make me better then I am taking it.

It's not been an easy decision for me to make. I have my family and my fiance that I've been with for 7 years and he is my absolute rock. We are dealing with being unable to have children but I am in a very low place at the moment in regards to it. I can't quite get my head around the fact that I'm never going to be pregnant or give birth and have a little part of me. I know I could always adopt as I've been told a million times but I'm grieving over the fact that I have always wanted My children. Once I come to grips with that then maybe I will look into adoption in the future.

They put me on the injections for one reason and that was to see if I would be better off without my ovaries as the injection shuts your ovaries down and it helped.

Not sure if this will be of any help to you hun but thought I would share my experience with you as it's very similar. Drop me a message if you ever wanna talk xx


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