Pregnant with stage 4 endometriosis and adenomyosis

[Sarb]

I've just found out I'm pregnant and would like some advice from any ladies that have the same conditions and been through a pregnancy. Is there anything I should be looking out for? Anything I should ask at Drs? Any advice is very much appreciated 🙂

[rachcopey]

Both my pregnancies were fine as both diseases are on hold whilst pregnant x

[Sarb in reply to rachcopey]

Thanks for the reply, it's a weight off my mind x

[LRog]

I wondered the same thing! I've also had a laparoscopy for stage for 4 endo a week ago and I wonder what the pregnancy experiences were for older women (over 37) following surgery for severe endo with adenomyosis.

[Ajm1983]

First of all massive congratulations! Did you fall pregnant naturally or with help! I'm struggling at the mo with having a Hysterectomy or not as the pain is so bad. I've no children

[Sarb in reply to Ajm1983]

Thank you, I must admit it came as a massive shock,as really didn't think I could have anymore children, I was trying for 9+ yrs and gave up hope. I too experience awful pain and was due to go in for an op end of the month to have surgery on my bowel due to endometriosis and to remove a polyp and 3 cysts,but that won't be happening now. I fell pregnant naturally,but was considering ivf.

Before making your mind up re a hysterectomy, I'd first see if you can get your pain under control, I'm on a drug called duloxetine for nerve pain and it's been amazing.

Have you got a good Dr and endometriosis consultant? As worth discussing your pain etc with them,but if not happy with what they say,always have a second opinion and follow your heart.

I wish you all the best and hope you get your pain under control soon xx

[RLJarman]

Hi I have two boys. I suffer with both conditions. Congratulations! I was on antidepressants and a few other medications which they kept me on and both my boys healthy.