Endometriosis and infertility : Hi I have... - Endometriosis UK

Endometriosis UK

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Endometriosis and infertility

JenRow7 profile image
6 Replies

Hi I have just found out I have endometriosis. I have also just got married last week. I wanted to try for a baby straight away. Now I'm feeling really down at the thought of not being able to get pregnant. Does anyone have any information or positive experiences that will help me?

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JenRow7 profile image
JenRow7
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6 Replies
HeatherJM profile image
HeatherJM

Hey JenRow7 :) I relate to you - a diagnosis of endo is a real blow and takes a good while to come to terms with. I'm still reeling from my diagnosis a few months back.

Do you know where the endo is growing/what stage it's at? Have you spoken to a fertility consultant about it? If you're not sure on any of this contact your GP for a referral to your gynaecology centre. Some women who have endo struggle to get pregnant but some don't - it's a very individual disease. My friend has endo and two happy healthy kids. I have been trying for 5 years and will need IVF as my endo is severe.

We're all here if you need to talk. Big hugs xx

JenRow7 profile image
JenRow7

Thanks Heather. I'm going to see the gynaecology doctor next week so I'll ask her. I think that's what I'm struggling with the fact that it's different for everyone. I don't know what stage I've got. I just had tissue in my bladder. Hopefully will be happier when I get more information. Thank you for replying x

NDE1987 profile image
NDE1987

Hey hun...firstly I hate Endromestoisis....I feel that it has taken over my body and it eating at my fertility...I have had 2 failed IUI's and a failed IVF....currently in the 2ww with my second IVF....however i started spotting yesterday so now I feel like its failed aswell. My cousin had IVF and it was a success on her first try.

I think it does depends on each case.... I hope it works out for you hun....its not a nice journey... its mentally draining and I have forgotten what happiness is....every time there is a failure and it hurts. x

Tillyfloss profile image
Tillyfloss

hi. Firstly congratulations on your wedding, I hope you are enjoying it 😊.

I won't sugar coat it endometriosis sucks and you need all the support you can get.

when you have your appointment ask the stage of endometriosis, where it was located and how healthy everything else looks. Did they do the dye thing through tubs - sorry I can't for the life of me remember what its called!! As fertility is priority look into the usual things with health diet ( there is an Endo diet ), lifestyle etc to give you the best chance.

I have a friend with grade 3 endometriosis had cysts etc and they have naturally had 3 children ( the last was a happy a surprise,) it's unfortunately like a pot luck as its just likely to be a problem but until you try you won't know so enjoy being a newly wed and try not too get stressed about ( easier said than done I know).

I hope you are pain free.

take care.Tillyfloss

Hannah27 profile image
Hannah27

I can't really help but sending bit messagey hugs xx

sal-lew profile image
sal-lew

Hiya. Congrats on your marriage! I have been diagnosed this week too and my first thought was about fertility so I know how you feel. I can't offer much in terms of my experience, as I haven't tried for a baby myself yet (we are next year) but my Mum knows someone with endo, who has had 5 children with no complications. Speak to your GP about it, mine said as soon as we want to try for a baby to go in and we would chat fertility options. They said they would want us to try for 12 months before offering any help on the NHS.

As difficult as this is, please don't forget that people can struggle with or without endo, and everyone is different. Alternatively people with endo can have smooth pregnancies. Never blame anything on yourself and try not to put any pressure on as that will make it trickier xx we have agreed I will just stop birth control in the new year and let nature take it's course.

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