Hip pain... : For the last four months I've... - Endometriosis UK

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Hip pain...

saffieb profile image
11 Replies

For the last four months I've had hip pain alongside lower back pain. The pain in ny hip stretches down my leg and across my right buttock. It ranges from dull and achy to tingly. The doctor I visit was nasty and did an internal examination. She stated she felt nothing and refused to refer me. I have been diagnosed with moderate to severe endometriosis at 21 and I'm now 27yrs. I went to push doctor to get pain relief and naproxen does take away the pain. However, im masking the pain and I still don't know the cause. Is this the endometriosis? Does anyone else get pain like this?

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saffieb
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11 Replies
LELE30 profile image
LELE30

Hi there

I have been diagnosed with severe Endo and had my second lap Feb I'm still experiencing lower back pain daily and I suffer on my left hip always top of my buttocks. I would like to know if this is Endo related also, it must be. I'm having my follow up soon so I will ask them. xx

saffieb profile image
saffieb in reply to LELE30

Im convinced it's related to endometriosis. The doctors suggested I'd injured my back but I have no idea how if that's the case. It will be interesting to hear what your specialist says. I can't seem to get near a specialist these days =( I also have was wondering if it was a cyst causing the pain.

LELE30 profile image
LELE30 in reply to saffieb

My Gp is useless when it comes to my Endo they haven't got a clue they gave me back exercises to do like it's a injury also. I have been getting really bad lower side pain near ovary so thinking I may have a cyst again similar pain I had for years and years and was always told I was suffering from normal ovulation pain miittschmerz i was told I had this for years by different doctors and nurses. It wasn't till years later I stated have bowel symptoms my gp then said I had ibs I pushed for a scan and as soon as they scanned me they could see there was one big mess inside years of undiagnosed. I actually googled my symptoms as I knew something wasn't right and always Endo came up so I wasn't surprised when I got told I had severe Endo I already self diagnosed myself. It's a condition that really needs to be taken more seriously and checked n women.

Are you under gynecology? Go back to your doctor and ask for a scan, be persistent with them they really don't know much about Endo I know my gps don't. You tell them u would like to be referred to a specialist to rule anything out. Xxx

Jenstir75 profile image
Jenstir75

I get this too on my right side and at my lap yesterday surgeon confirmed that right ovary was stuck to everything on that side basically.

saffieb profile image
saffieb in reply to Jenstir75

Can they do anything if its stuck? Ive always had pain on that side and bleed from my right ovary during my lap which was 6 years ago. I've not wanted another one incase it goes wrong again like previous one did.

NW248 profile image
NW248

Demand to be referred to a specialist on the list at bsge.org.uk/clinic

Your GP can not refuse to refer you. If the pain is going down your leg it indicates the endo could be very far down in the pelvis and it needs to be one of these specialists that deal with it, not an average gynae.

saffieb profile image
saffieb in reply to NW248

My last experience at the doctors has totally put me off going back but I thibk I've got to try again.

NW248 profile image
NW248 in reply to saffieb

Choose the nearest NHS ones off the list, give the GP the details, don't leave the choice up to them. It is NHS policy that in cases where the endo is deep down in the pelvis only these specialists should operate. Don't let them fob you off with a local gynae.

Jenstir75 profile image
Jenstir75

I've been referred on to a specialist now so hopefully it will get sorted

saffieb profile image
saffieb in reply to Jenstir75

Good luck. I think I need to get referred again. Have just been really put of by my last attempt at the doctors.

Private70 profile image
Private70

Yes it could be burstiss scatia as well all combined.

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