Hi all. I've recently been diagnosed with endometriosis and Im looking for some general information.
I have had awful abdominal pains for years, but more recently erratic periods that were very heavy and also very long plus lots of other symptoms of endometriosis. Ive also had bladder and bowel issues. For the last three years I've been told I probably had IBS.
Referral recently to a gyny oncologist due to abnormal ca125 blood test led to ultrasound and CT scan confirming cysts to ovaries and bowel stuck on one side to the tube/ovary. Fast forward and I'm now three weeks post operative of removal of both ovaries/tubes and cysts. During my surgery, my consultant has now confirmed I have endometriosis.
Since then nothing, I've had no histology results back (one cyst was septated) and also no follow up with my consultant. I feel like Ive been told I have this and now abandoned and worse still keep thinking that the removal of my ovaries wasn't necessary as I think from what I have now researched about endometriosis, that this was probably the cause of all my problems. Sorry for the long post!