Endometriosis UK

Signposting to external websites should ONLY be to regulated organisations

Dear All,

Endometriosis is a dreadful, debilitating disease that presents differently in every woman, but is for most, a daily challenge. Therefore, to ensure the distribution of accurate information, we only refer to other registered charities or regulated bodies, for example, the BSGE (The British Society for Gynaecological Endoscopy).

As you are aware, the purpose of Health Unlocked is to allow women to share their own experiences in a safe environment. We appreciate the help and guidance that many women provide others regarding endometriosis, which is of huge benefit to fellow sufferers and those of family and friends affected. However, the Endometriosis UK charity cannot be seen to endorse other websites or social media groups. We as an organisation, small though it is, have information that is pre-approved by MAP, our (Medical Advisory Panel) and therefore from a legal stand point, cannot be seen to be advising beyond that.

In summary, we kindly ask that you refrain from signposting to external websites as we will delete or amend those messages that are found to be non-compliant with our code of conduct.

All best,

Simonetta, Endometriosis UK

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