21, just diagnosed

So after a long journey from being diagnosed with PCOS early last year after 5 years of scans, pain and blood testing I spent 3 months mid last year in agony in and out of hospital with them trying to manage my pain. I was referred to a new gynachelocigal consultant who said he thought it was endometriosis. He put the mirina coil in place there and then said he would arrange an urgent laparoscopy. I finally had my laparoscopy just over a week ago and they found quite severe endometriosis, they removed my coil in surgery and burned away some of what they could. I was then entered into a medical trial for enrometreosis and placed on th depot injection. My consultant said I would need further surgery however I'm left still in the same pain and received my follow up appointment for the middle of march today. And besides all that I'm scared of what the future holds for my and my partner.

4 Replies

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  • Hi Lullabelle

    If you need someone to talk to, I'm sure someone from our team of volunteers in our helpline will be happy to listen!

    endometriosis-uk.org/helpline

    Louise

    Endometriosis UK

  • Are you in the UK? If so, it sounds like you should have been referred to a BSGE specialist centre for Endo. I really would talk to the advisors at 'Endo UK'.

  • Thank you for replying. Yes I am in the U.K. How do I go about that? Do I ask my consulatsnt?

  • Lou 7707 is one of the administrators at 'Endo UK'. she has already emailed you - see above. It would be best to talk to her or one the team, as it depends on who you have already seen - exactly (we are not supposed to mention medics and centres by name on here as it could affect 'Endo UK's ' charitable status), and what they did and the reports. It all depends on whether the team you saw was already 'BSGE.

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