Diagnosed with Endometriosis (coping with migraine...)

[Loku]

Hi everyone,

A month ago I have been diagnosed with Endometriosis. Whilst talking to surgeon that performed laparoscopy about the procedure and the results, I also took the opportunity to clear out whether all the migraine that I am getting (more than 10 days per month) might any connection to this inflammatory illness but got no clinically proofed explanation to it.

I am now wondering if there is anyone that is experiencing these two as mostly coming together? My experience is that when the Endo starts it usually triggers migraine. Pain in the stomach, always on my right side, streams down to my thigh/leg (Femoral/Sciatic nerve?), up behind the hip, up the back all the way to the right shoulder, down the arm (Radial nerve?) and also up on the right side of the neck and jaw. I start to feel pressure and pain in and around the ear, behind the right eye (that starts to tear and gets red), and up the right side of the scull to finally culminate in a full in progress migraine. My right side of the body gets colder than the left like as if circulation of the blood is not really functioning as well. As for the Endo and stomach pain it is, I would say, manageable, but as it is always coming or I would say triggering this hell of a migraine I am barely coping when it's at its worse.

Does anyone experience the similar problem and does anyone get any treatment for the both together? I am now taking Sumatriptan 100-200 mg for the migraine attacks and Ibuprofen 800-1600 mg and Paracetamol 2000 mg for the Endo when both hit together. Surgeon suggested now Synarel/Nafarelin for the Endo. Any experiences on Synarel/Nafarelin effect on migraine?

Best, L

[Hidden]

I talked to my physiotherapist about this and it turns out it's related to the nervous system. What happens is your nervous system is on override from all the pain and it begins to get overworked so it causes a migraine.

Try stroking which calms your body down, use 3 fingers and stroke every part of your body 3 times. If anything tickles go slower.

[carrie75]

Hello loku,

I'm really sorry to hear you are experiencing migraines at the same time as endo pain. I also get migraines really bad - just before stage 4 was diagnosed last year I was averaging a migraine or two each week - but haven't had the endo pain at the same time before.

My gynaecologist tried to put the migraines down to stress....however I know they're linked to the endo as when taking a nasal spray last month called Suprecur during ivf, I had absolutely no migraines. Didn't even need to touch my prescription meds (I also take sumatriptan) and sailed through life quite easily compared to how I normally feel. Once ivf was over I was then off work sick...with a migraine.

The suprecur tells your body to stop producing oestrogen, albeit temporarily during fertility treatment. I've read it can be used as a treatment for endometriosis but only for a one-off 6 month period and with hrt provided.

I definitely believe the inflammation the endo causes then brings on the migraines. I hope the combination of the sumatriptan and paracetamol can really help, fingers crossed. Wishing you all the best X