...... after 8 years !!!

Following my diagnostic lap in March I was told by general Gynaecology that as my bowel, uterus and POD where all stuck together there was nothing they could do as surgery was too dangerous. I was offered Zoladex for 3 months to see if his eased my symptoms. With guidance and support from several ladies on this site I went back and asked for a referral to an Endometriosis Specialist. I was informed that I would have to go back to my G.P and ask for this which I did. Finally an appointment arrived in September and of I went to my appointment to be told I had been referred to the IVF clinic ..... from there I was then referred onto Castle Hill Endometriosis Centre in East Yorkshire. I met the consultant on Friday and cried with relief when he told me he could operate as part of a multidisciplinary surgical team and hopefully ease my discomfort. I have to have few more investigations but once done should have my op in 3/4 months.

...... finally after 8 years Im getting somewhere ! Dont give up and get referred to the people that know .Thank you to the ladies on here for your encouragement and support XXX

4 Replies

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  • Hi - I am so pleased you are now receiving the appropriate treatment. You should report the previous gynaecologist to the RCOG as this is the only way to prevent this from happening in general gyane.

  • Glad you are finally getting the treatment that you need. It's awful that you were told there was nothing they could do.

    Good luck hope it goes well x

  • I'm so sorry to hear of your struggles. My mum is currently waiting to be diagnosed and because of her history with endo, our GP sent her straight to a specialist. There really needs to be more specialist centres as it's such a terrible condition. Good luck with everything! x

  • So pleased to hear this, and I hope that all goes well. Please do as Lindle suggests.

    Also, would you consider putting another post on here, where you make it obvious in your first line - first words - about the importance of being referred to a BSGE Centre??

    Many, many of the posts on here are from people who -like you - have experienced a trawl through non-Endo Specialist Gyneas, before (if they are lucky) ending up at an BSGE Centre after years of suffering and (often) pointless treatment by GPs and general gynaes.

    I don't understand why this is not more of a major feature in 'Endo' campaigns, but the women on here are still not getting a clear message about BSGE Clinics, and it's not possible to answer everyone of the posts. If there was something eye-catching in your post , then maybe more women would click on to read the full detail.

    NB 'Endo UK' might tell you off - or even take down this post - because you have mentioned the name of the BSGE Centre.

    But, wonderful news. Congratulations also on your persistence and courage!!

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