Thanks for reading this.
I'm currently sat on my bed, feeling anxious yet again at having to have a day off and work not really understanding.
I've only been in my job for nearly 10 months and unfortunately it's fallen at a time where my endo is just playing havoc with everything.
To give a background: I had CIN2 on my cervix and had to have my coil removed for treatment at the end of last year. The same thing happened around March time so I decided to give it a try without the mirena because the come down after having it out was horrific and everything just started to go back to normal...my moods..my sex drive etc; it felt great.
Then unfortunately, in the last 6 months or so, my symptoms have been so awful! The exhaustion, down days, cramps, bleeding gums, dry eyes, sugar lows, hip pain, back pain to name a few, have just been unbearable. I've had to have time off and it got to a point where I realised talking to my line manager was key. I explained that I can still work at home on bad days as it's just easier than sitting in pain at my desk and sitting on my bed working isn't exactly too taxing. He was fine. 2 sick days later I was called in to an informal meeting with my HR manager and line manager...this was handled in an horrific way and it turns out my HR manager had openly discussed my illness in our open plan office and had gone to further members of staff to tell them about it, without my permission.
I chose not to make a formal complaint as I felt I'm too new to be in that position but I feel very unsupported in general.
Today I woke up exhausted, I feel very emotional (thanks hormones), anxious and I have bad cramps; I emailed work to say I'm ill but requested a generic email being circulated of me being off again, isn't sent around the office as I fully intend to stay in bed working.
My HR managed has basically emailed to say if I can't make it to the office then he's going to proceed to tell staff they can't get hold of me. I just replied saying I feel he doesn't understand my illness and despite what it appears, I still want to work but it's just more comfortable at home on bad days. I just feel so unsupported and feel very anxious about the whole thing.
Has anyone had a similar experience and do you know if there are representatives that can go in to work places to chat to managers about the reality of endo?
I see my gynae next week so I know it will only get better once a treatment plan is sorted again - but it's never a short term process.