Chronic back problems with Endo - Endometriosis UK

Endometriosis UK

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Chronic back problems with Endo

angelnic73 profile image
14 Replies

Hi I'm wanting to know of anyone diagnosed with Endometriosis has had ongoing back problems. Not the pain associated with menstruation but chronic back problems. Only asking as I am being treated for Endometriosis but where I live, the doctors won't provide the laproscopic diagnostic surgery until they try to treat the symptoms first. Thanks!

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angelnic73
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14 Replies
JeanOsborne profile image
JeanOsborne

Hi endo on the us ligaments can cause lower pack pain, as the nerves that run along them join onto the sciatic nerve. Hope this helps.

angelnic73 profile image
angelnic73 in reply to JeanOsborne

What are the US ligaments? Also my problem is that my pelvis ends up misaligned every other week causing a lot of pain. I'm trying to figure out if it's related to Endo. Thank you for your input. :)

JeanOsborne profile image
JeanOsborne in reply to angelnic73

They are the ligaments that support the uterus. They run alongside it and round towards the back.

Milton1 profile image
Milton1

Unfortunately I have no answers for this but I wanted you to know you are not alone since having nodules I've had horrific back ache I had nodules removed and now 3 months later back aches returned I am still battling to get answers to this I just wanted you to know you are not alone go back and don't stop until you are happy with what they say

Cupcake1617 profile image
Cupcake1617

I had my first lap on Wednesday and was diagnosed with endo. My flare ups would always start with lower back pain and right hip pain, I would have difficulties standing up, walking (even short distances) and my back would often lock. The only things I found to ease the pain were strong pain killers, red tiger balm and hot water bottle.

Hayayaya profile image
Hayayaya in reply to Cupcake1617

You’re pain sounds the exact same as mine. I am waiting on a diagnostic lap and constantly worry “what if they don’t find anything” this has given me hope!

Is your pain any better after the lap?

30withendo profile image
30withendo

I also suffer with really bad lower back pain, it is now also waking me through the night and getting worse. I had endo but was removed during my lap in July. But still suffering with endo symptoms so I don't know what's going on with my body but my back hurts so much every day I never get a break from it its constant. No matter what pain relief I take it doesn't help 😔 x

Muppet34 profile image
Muppet34

I was rushed into hospital for emergency surgery as I had severe stomach cramps, after 8hrs of surgery I was diagnosed with endo and had an overy removed, since surgery I have had severe back problems, the last 2 months I have started a plan with natural supplements and have noticed a difference already, please contact me as I would love to advise you about the plan I am on

Crystal_d profile image
Crystal_d in reply to Muppet34

I would love to hear more about the natural remedies you are using xx

angelnic73 profile image
angelnic73

Thank you all so much for your input. Unfortunately I'm in the very early stages and haven't had a full diagnosis though they are treating me for it as I have all the symptoms. Do they easily provide laps to residents in the UK? Here the doctors make you try to treat it with birth control for a very long time before providing a laproscopic surgery to diagnose. It's quite frustrating. They are concerned with the "risks" involved with the surgery but if I'm already completely miserable and in pain all the time, you would think the surgery wouldn't be an issue.

bakequeen profile image
bakequeen in reply to angelnic73

This is exactly what happened to me, since having all the symptoms of endo and it constantly being mentioned over the years through all my appointments, i am finally going for a lap next week. But they didn't offer it easily, i have tried every pill there is and other things, they are fitting the coil st the same time but were only planning to do that and not the lap so were STILL not planning to actually diagnose me! i just cried at my last appointment and shouted at my doctor and demanded a lap, i think he felt sorry for me and that's why i got one! you need to be absolutely firm and demand one! us girls deserve an answer! i see your post was a while ago, hope you have since been referred at least x

DrWatson profile image
DrWatson

Yes - I was only diagnosed after the hospital physio sent me for a full spinal MRI. My GP referred me to them due to chronic back pain, even though I also had pains in my abdomen.

Lil_Lady profile image
Lil_Lady

I have lower back pain due to whiplash and chronic hip pain due to another illness.

I get very bad pelvic pain and feel like a truck has hit my ovaries.

I would say my endo doesn't help my hip pain or pain in my groin and it can be hard to tell the difference between a flare up in my chronic pain and a flare up with my endo.

So in answer to your question......yes endo could be causing you lower back pain.

I hope the treatment that your doctor provides helps you.

Keep us updated. X

Greengirl profile image
Greengirl

Yes I have had chronic back pain for years caused by my pelvic pain. It has caused myofascial trigger points in my shoulders and hips making me terribly weak. Also lower back pain, neck pain etc. I think because the the adhesions are pulling on the surrounding fascia ie. the connective tissue, this affects the entire muscoskeletal system since fascia is everywhere in the body. eg. like a wetsuit. Fascia is not studied much by anyone I've discovered so I don't think medical professionals make the connection between pelvic and back pain.

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