Hip/Back pain - sciatic endo?: Hi Everyone... - Endometriosis UK

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Hip/Back pain - sciatic endo?

Sarita_sarita
Sarita_sarita
7 Replies

Hi Everyone! Hope you are all keeping well. Long post, apologies!

So I was diagnosed with Endo via lap this June and since then I have developed even more symptoms. Just wondered if anyone else on here suffers from hip and lower back pain at all? The hip was a problem for me for a couple of years before diagnosis but used to be in line with my cycle. Now I get pain all month round for 99% of the days. By the end of the day I am limping home from work and unable to get the full range of motion in my hip/leg when sitting down (I'm usually super flexible!). I can't even really describe the pain... It's just very tight and achy and almost feels like there's a short string joining my hip joint together that is being pulled when I walk (I know that sounds insane!)

I'm not even sure if it is linked to my endo but I have a feeling it is. It is purely my right hip and recently in the last month or so I have been getting some lower back ache also that isn't too severe but just very uncomfortable - having trouble getting comfy in bed/on sofa etc.

I have looked up a little bit about sciatic endo although there's not an awful lot around about it. I wonder if anyone could answer my questions;

- Do my symptoms sound like they could be sciatic endo of sorts? Or something different?

- Would this usually show up on a normal lap or is there another form of diagnosis? And most importantly...

- What can I do about it?!? The pain is limiting my daily routine and work and nothing seems to relieve it! Also I am still waiting for my "2 month post-op" appointment - I'm only booked in for mid-November hence why I am seeking advice ☺️

Thanks so much to anyone who can help!

S x

7 Replies
oldestnewest
Tboag

Hi hunny, I don't know alot about sciatic endo, but I do know endo in lots of different locations can cause the kind of pain you describe,

Are you being seen at a bsge specialist centre, ??

Did they remove endo at you lap, ????

Xx

Reply
Lindle

Hi - I remember your history. Did you have your lap in a BSGE endo centre as you had adhesions to your bowel? Sciatic pain is often a symptom of rectovaginal endo - nodules on the uterosacral ligaments.

Reply
Sarita_sarita

Hi ladies

Thanks for your replies.

They excised endo from the utero-sacral ligaments and pouch of Douglas as well as pelvic wall - I think that was it! It wasn't done at a bsge centre though which I'm now feeling is the big mistake I made as I worry they haven't removed everything properly. That being said I am glad I at least got a diagnosis for now to get work off my back! Looks like I might have to get referred for another lap at bsge then I suppose?

Thanks for the link Lindle, I'll take a look xx

Reply
joreilly

I have pain in my right hip and right lower back, which is a daily pain. I have endo on the right uterosacral ligament, RV endo, a nodule attached to the bowel on the right, and my uterus is firmly stuck down to the bowel nodule and some lower all on the right side. I assumed it was all endo pain. I'm waiting for my surgeries at the moment so I've had none of the endo tissue removed yet.

Reply
Rach3187

Yep I do have been suffering for ongoing lower back pain and hip but nothing have been found just saying IBS....

Reply
Dangermouse381

Hi there

Sorry to pick this up over a year later. Just wondering how you are feeling now? I get lots of hip and lower back pain. Been off work all week with it. Did your pain subside and did you ever get your referral to a bsge centre?

Reply
Carryann

Hi ya, yes this all sounds like endometriosis to me , I have same types of pain & my daughter suffers with it. They can give you the pill but you have to take it all the time. There are some other treatments but you just have to stop the ovaries from working. I live on pain killers as they took my womb away 20 years ago thinking that would stop it, they clearly did not know what they were doing and all those years ago there wasn’t much known about endometriosis so I went with what the doctors told me!

Hope you get your follow up appointment soon.

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