Advice please : So I have had pains in my... - Endometriosis UK

Endometriosis UK

70,500 members52,066 posts

Advice please

Elle90 profile image
1 Reply

So I have had pains in my thighs, pelvis and lower back for the past year and a half on and off and some days the pain has been that bad that I have had to have days off work. I had a lap in January which revealed that I had scar tissue connecting my colon and abdominal wall and despite never having trauma or previous operation my gynaecologist told me that he could not see any visible endometrosis. This lack of diagnosis frustrates me as I have not received any advice since and my pain has come back following the operation. My pain has recently got severe and lasting approx 3 weeks a month so I have asked my gp to write a letter to hurry up the appointment. I have contacted the hospital since and they have said I have an appointment in the gynaecology unit of the hospital in 5 weeks. I have also contacted a endometrosis clinic who said their waiting list is 6 weeks approx. would you suggest that I scrap my appointment with my gymaecologist and move to a endometrosis specialist clinic? Have any of you found a difference? Im nervous that my current gynaecologist will not do surgery again and I feel like I will feel a lot more in control if im diagnosed. Any advice would help ️xxx

Written by
Elle90 profile image
Elle90
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Skelri profile image
Skelri

Hi Elle90,

I understand that you're frustrated, it's very difficult to portray to doctors just how much pain you're in.

I've been keeping a pain app up to date for the last 6 months, and it really helps show that I'm in pain, location and type if pain I'm in. Perhaps give that a go too?

In addition, if you can I would go for both appointments - have the follow up with your gynaecologist but also go to the endo clinic. You're better off seeing both within a week, than having to wait another few months for an appointment again.

Hope that's helped, and I hope you get some help soon

You may also like...

Creating awareness - advice please!

suffering with endo and my operation is on the 24th, I’ve suffered with endo pains since 2013 but...

Possible Endo - advice please

could use some advice. I have seen a endo-specialist in December and she suggested a to have a lap...

HRT and Prostap- advice please

HRT... He has put me on Ellesse Solo 1mg a day and I was wondering if anyone had had any...

New to this! Help & advice please

that until I have a firm diagnosis and have been told my options. In the last week my pain has...

Advice needed please

worrying me is I have had a really bad runny tummy and I am passing black clots. I have had no...