Pain is worse now than before : Hi I have... - Endometriosis UK

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Pain is worse now than before

RosCookie1976 profile image
12 Replies

Hi I have had my hysterectomy but it sames like i am more in pain now than I was before my op so when I get my six week cheek i think he be refuring me to special center xx

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RosCookie1976 profile image
RosCookie1976
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12 Replies
KleineAnna profile image
KleineAnna

Good morning, Sounds very familiar to me. I had my hysterectomy October 2015 and now (August 2016) I am still 24 hours in constant pain. The MRI scan finally gave a clue: I have developed a scar endometriosis just below the umbilicus. They have left the ovary in to help me going through the menopause - which turns now out was not the right decision. The next step is using a nasal spray (Synarel) and see if this makes any difference.

Hopefully you will find something that works for you very soon.

AmyLee profile image
AmyLee in reply to KleineAnna

Hi, I'm in a similar position to you, hysto leaving one ovary in Sept and pain worse than before, tho worst is immune system done in and worse fatigue. Intrigued why nasal spray recommended?

KleineAnna profile image
KleineAnna in reply to AmyLee

Hi, every time I had a hormone medication I had severe issues: Panic Attacks, loosing balance (falling without warning) etc. The nasal spray gives me more control of the dosis then the injection. The nasal spray is taken twice a day, while with the injection I get a month in one go. If things goes wrong I can stop the nasal spray and get the body back to 'normal' quicker.

Reading further comments down the line, I am really surprised why doctors are setting expectations to be back at work after 6 weeks! I had really issues at that time and many discussions with Occupational Health! Finally the doctor kept controlling the faced in to work, but after 6 month I needed to go back to full time as the company would have then cut my payments. Before the operation it was not explained clearly how long everything will take - only said I will be back to work after 6 weeks.

Also I am making very good use of my private health insurance - they don't pay medication (I pay for some of it in cash as everything available through NHS I'm allergic to) but I have faster access to a specialist.

RosCookie1976 profile image
RosCookie1976 in reply to KleineAnna

Thank you hope they sort you out soon .

RosCookie1976 profile image
RosCookie1976 in reply to KleineAnna

Thank you

JeanOsborne profile image
JeanOsborne

Hi six weeks is still very early days. It can take anything up to a year to completely recover from a hysterectomy.

missymo profile image
missymo

Very early days roscookie i.m afraid.it could take months.xx

AmyLee profile image
AmyLee

Yes have to agree, I'm nearly a year post hysto and my symptons are still changing - bowel in particular takes time to settle. I think your Dr will say give it time but no harm pushing for specialist referral, especially as it like take months to come through

Marcia71 profile image
Marcia71

I too am still in pain after hyster and I had mine in Feb 2015. I did have ovaries removed but endo still growing.

I'd push for referral to BSGE clinic but it will probably need your GP to do that and it takes time.

I also agree with others that 6 weeks v early so need to wait at least 3 months to assess but no harm in asking for next referral. You could always cancel if you feel better by appointment time.

I'm also in more pain now than before my hysterectomy. I had my hysterectomy April this year - I am also bleeding like mini periods I'm feeling very confused xx

RosCookie1976 profile image
RosCookie1976

They did say to me that i could bleed up to 6 to 3 months anything after makes sure you tell them so they can check it out .#clairew23

Thank you I have an appt with my gp on Tues xxx

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