I am 25 years old and do want to have kids at some point in the next few years. I have been trying to solve my health mystery for over three years now. I have been seen by so many different doctors and had so many different tests, all coming back negative (ultrasounds, x-rays, etc.).
A day or two before my period my right shoulder starts to hurt. This pain could be described as throbbing, muscular feeling, sore, tightness, achy and sometimes worse when taking a deep breath. It continues throughout my period. The only thing that helps is advil. It seems to dull the pain enough so I can go about my day. I have to take it every four hours or the pain creeps back, and it adds up to a lot of advil and is obviously not a good thing. I do not really get any other symptoms. My cramps during my period are nothing extreme. And bleeding is normal levels, nothing too heavy or anything. Lasts about three to five days. After my period, the shoulder pain continues for a few more days to a week, then for about two weeks I am completely pain free.
I really think it is diaphragmatic endometriosis. Every website and search comes to the same answer. The last obgyn I went to basically laughed at me when I suggested that was what I was suffering from. My primary doctor is trying to help me, but just doesn't know what it is I guess. Physical therapy was a joke, they didn't know what to do with me since one week I would be in pain and the next nothing. I am scheduled for an external ultrasound today, and my period started today, shoulder pain started yesterday. The ultrasound will probably be all clear is my guess like every other test.
I have tried birth control, and it didn't really fully help as I got my period since I took the week of placebo pills still. I really don't like the side affects of birth control and don't want to mess with my cycle as I do want to have kids in the next few years.
All I want is to know what is going on with my body. I just don't know what else to do. I am at the point where I just want to give up. Obviously I know I can't keep taking advil like I am currently, but I just don't know what else to do. I don't want to just take something to treat symptoms, I want to know what is causing the symptoms.
I am also afraid that it will get worse. I don't know much about diaphragmatic endometriosis as far as how it progresses.
Has anyone had similar symptoms or issues? How do I get my doctors to help me? What tests should I ask for? What should they be looking for specifically? Any advice?