So, I've actually been ghosting this forum for almost a year now, but always put off writing anything up. Short bio: I'm 24 and in the U.S. This site has been a great comfort and help to me in my journey so far. My story is that I've pretty much always had awful periods since I was 12. Heavy flow, long periods, very irregular (every 3 months or so) and intense pain. By the time I was 17 I'd had a colonoscopy and was diagnosed with IBS for my extreme abdominal pain, as well as diagnosed with PCOS (they checked my blood hormone levels, which were crazier than anything they'd ever seen. Dr was shocked). I was put on a high dose of birth control and for the most part, that seemed to even out the symptoms. Or more like, any new symptoms I put down to the effects of the BC/IBS/ bad periods continuing.
Fast forward to last year, I'd missed out on about two weeks worth of pills (moving, quitting jobs, moving again) and the night my period started I ended up going to the ER. I was throwing up, in extreme pain, worse than anything I'd ever felt before. It was a small town ER so after a few house hooked into the blood pressure monitor, I was sent home when the pain pills kicked in.
Afterwards, every month I got my period, I was really sick. Throwing up, nausea and diarrhea + running a low grade fever and feeling miserable. It continually got worse every month to the point that in February I was in constant pain, still working 60 hrs/wk and finishing my college classes. I would break down crying on the way home from work. It's been the lowest point in my life.
I finally was able to make it to the Dr in March (I'd had to postpone the appointment twice because my job NEEDED me, ha) and based on my symptoms, history, family history, and how much pain I was in, he confirmed that it was probably Endometriosis. Without the laproscopy we won't know for sure, but at this point it's "officially unofficial." I'm now taking the pill continuously, and on a lower hormone dose.
I quit my job, a decision I'd been fighting with for a while. One of my manager's reactions was "You could have told me, I am a woman. I know what a bad period is like." At this point, I was so emotionally ragged I couldn't even react to that. This is the same person who never believed me when I would say I was in pain, and only let me off work because I was running a fever and we work with kids.
The second biggest change was my diet. I first gave up caffeine, then chocolate, following the recommended endo diet. I'm now working on cutting out wheat and dairy and cutting down on red meats.
I just wanted to say to everyone that I feel a lot better, but I know that can go in an instant. I think a large part of that is I've had a lot of time to destress and refocus. If I'd written this two or more months ago, it would've been totally different. I'm trying to exercise more and figure out what my diet triggers are, since that's one of the few things I can control. I am worried about my ability to work in the future. I'm pretty much worried about the future, period. But, still fighting.
And a huge, incredible thank you to everyone here. Even if you didn't know it, this community continues to be a huge support for me. Thanks guys.