My own therapy... my way : Evening fellow... - Endometriosis UK

Endometriosis UK

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My own therapy... my way

tammy280990 profile image
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Evening fellow endo sisters 😊

It has definitely been a while since I was last logged onto this forum, I was last here in 2014 where I struggled with getting diagnosed. I then went onto having a lap and diathermy surgery for my endo. Had aprox a year totally symptom free .... but now it's back :-( ... with a vengeance.

When I was symptom free I managed to piece my life back together. .. found the man of my dreams, a job I loved and had a healthy social life.

But as each week goes by, bit by bit the control i finally had back of my life is being prised out of my fingers.

Various gp referrals , sick notes, opiate based pain meds have now become my life... not what once I worked so hard to achieve :-(

Until the day I decided to start my vlog! I finally had control of something again. I was able to reach hundreds of people about why I wasn't able to "pop out for a drink" , or why I was just so drained all the time. I was able to explain how this disease effected me and my life.

I want these videos to reach as many people as possible , endo sisters alike , families and friends of the sufferers , people who know or work with someone who struggles daily with endo..... anyone basically!

This has been my own therapy, it has pushed me waaaaaaayy beyond the boundaries that I put up for myself.

And I highly recommend doing it for yourself 😊, it has made me realise things I never knew about myself previously.

I'm so proud to have raised more awareness about this nasty disease.. so if you feel like you want to, please go give it a watch and a share :-)

My partner and I have a lot more to come on the channel :-) so stay tuned.

I love and respect all of you endo sisters! It may be a negative reason why we are all connected but it really is such a special community to belong in xxx

youtu.be/3Hjabkqt_1I

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tammy280990
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GraceK profile image
GraceK

Your story touch my heart. I have lived with endometriosis since a was 13. I'm 25 now. I have a daughter so can't stay in bed but it's so hard to get up everyday. I'v had 4 surgeries for my endo. And it still keeps coming

tammy280990 profile image
tammy280990 in reply to GraceK

Aww I can only imagine how exhausted you can be, what with battling the daily battle of endo and being an awesome mum to your little one! Most days I struggle to look after myself so your a super woman. I'm glad you can relate ... since doing these video's I've noticed I'm not the only one to feel the things I do. And that In itself has helped more than I even knew at the start.

Hopefully one day us endo sisters won't have to worry about the physical and mental scars this disease plagues us with.... maybe one day xxx

GraceK profile image
GraceK in reply to tammy280990

It is hard but I do it some how. I use to take pain killer the doctors gave me but now I just that I don't have insurance and have pay out of pocket for my treatments. My last surgery was in January and it came back within 2 month this time. It's hard to keep a job to pay for treatments so this time I have no help. I also suffer from rare cycst on my ovaries that just grows and bleeds all the time. I live in a small town so it hard to get the help I need when I need help

brizzlebird profile image
brizzlebird

Hi Tammy your videos are great. It is powerful to hear someone saying out loud the same things I feel. I was diagnosed with stage 4 in June have my follow up next month.

Best Wishes xxx

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