People with Endo on the ureter.

[Lovisa]

Hello, I'm looking for some information regarding endometriosis on the ureter, I was diagnosed with endo few years back, I had my last surgery in 2011, I was on copper coil "my choice" from 2011 till 2014, I was put on to the mirena coil at the start of 2015, my periods have stopped and I had very little pain for the first several months, now I have pain starting again, but I'm getting an odd horrible pain, starts from the right of my abdominal then goes to my kidneys, only seems to last for 10/15 mins but it's horrid. I was told I had endo on my bowels "which almost went fully through" tubes from the kidneys and the pouch of douglas and uterus. I'm awaiting an appointment with the hospital which should be in October, but I'm worried the pain means something is going on.. I do have IBS as well but never had that pain with IBS flair ups.

[Bethleah]

Hi. Are you waiting for a bgse appt. As your bowel is involved I'd insist on a refferal to a bgse centre. X

[Lovisa in reply to Bethleah]

It's not a bsge appt

[Lovisa]

I am from the UK, My problem is I'm agoraphobic and the closet BSGE centre is Cardiff, so for the mean time I'm using the easiest hospital for me. I'll wait till my appt comes through, see what they say.

[Sprinkles86]

Hi Lovisa I had surgery in December to excise severe endometriosis and adhesions which was primarily on the left side. My surgeon discovered that my left ureter had become constricted as a result of the endo and adhesions spreading this meant extended surgery (5 hours!) and recovery took about 3-4 weeks. My pain has been so much better since the surgery and I feel great! I do hope your appointment goes well and keep us updated xx

[Lovisa in reply to Sprinkles86]

Hello and thank you, so glad your pain is much better!! I'm not overly excited for my apps, so far every time I've been since my last operation it's like they don't really care. But hopefully with this new horrid pain and etc they might take a look again. Fingers crossed.