So the wait continues: So..18 weeks ago I... - Endometriosis UK

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So the wait continues

Cmg1978 profile image
4 Replies

So..18 weeks ago I was put on the waiting list for a lap and bowel dissection along with adhesiolysis....I had my preop 14 weeks ago and then patiently waited for a date...my pelvic physiotherapist pushed me to chase for a date and 6 weeks ago I called the booking manager to be told to stop calling (I'd called once) and that she would call me when she had a date..which wouldn't be for a while as I needed 3 surgeons in total..she finished the call by telling me to be patient!! I got pals involved 4 weeks ago and they have tried to push forward but they contacted me on Friday to say that due to me needing more than one surgeon they had been told by the booking manager that I'm in for a long wait as they can't get any surgeons together to do it!! I'm just so frustrated I'm in pain every day and struggle to get through work each day and just feel like my life is constantly on hold..sorry to rant on I'm just so fed up :-(

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Cmg1978
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4 Replies
Stellauk profile image
Stellauk

Is it UCLH? They are experiencing unexpected staffing issues. Everything is put back by 2-3 months.

Cmg1978 profile image
Cmg1978

Hi lindle thanks for the detailed response it's not a bgse hospital it's just a general hospital I wasn't aware that they should have referred me..they've been 'trying' to treat me for many years but at no point has anyone suggested or mentioned a referral!? So now I'm really confused and don't know what to do??

Booboo08 profile image
Booboo08

Same here i need two surgeons not 3 unlike you and i was told feb id be operated on. That was december haaa still not had pre op.

I cant book anything holidays abroad,camping,trips away incase letter comes.

Quit my job, for a more manageable one,workload wise.

Absolutely s##t ! Wouldnt wish this on anyone

Stellauk profile image
Stellauk in reply to Booboo08

I would still go ahead with holiday trips may be keep them in this country. No point try to keep your life on hold. My gynae consultant is extremely efficient. When I asked him when my next op will be, he just got his mobile out and counted the weeks and told me the date! That was later confirmed with the other two surgeons and all booked.

Try to enjoy yourself and live your life despite the endo.

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