Hello. I haven't received a diagnosis yet I am awaiting a scope camera into my bladder. Had one appointment but they were too busy to see me so awaiting a priority appointment but that was 2 months ago. For the past eight years I have had terrible pain when urinating it's worse around the time of my irregular periods. The symptoms come and go but every time it comes back it's comes back stronger and lasts for months. I'm perhaps clutching at straws with self diagnosis, but the more I read the more I can relate to the symptoms. The pain I have experienced is very severe and back and pelvic pain is constant. I have lost all faith in the NHS and am sick of being fobbed off. I have three children 9,17 and 19. I do not experience pain during sex. Just wanted to put this in here as I feel so lonely and agonised 😔
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