Decapeptyl not working for pain - Endometriosis UK

Endometriosis UK

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Decapeptyl not working for pain

harryhonda25 profile image
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Good Morning lovely ladies hope you are feeling ok today

I was diagnosed with endo in December where I had some endo burnt off my uterous i also have it on my bowel. Was put on Decapeptyl injections and Tibolone HRT. Although it has shut down my system, I am still in a lot of pain. I have my appointment to see the specialist on Wednesday 27th April. Anyone else experienced the same with htis injection.

Really appreciate your help and support

Love to you all

Janet x

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harryhonda25 profile image
harryhonda25

Good Evening Linda hope you are feeling well today

Thank you so much for your reply, this condition is so new to me I don't fully understand all about the condition yet.

You are so knowledgeable, I only wish they would have discovered your problems earlier so you wouldn't have had years of pain.

I am looking forward to my appointment on Wednesday next week. Just feeling poorly all the time now and the injection and HRT are doing nothing.

I struggle with pain relief as I am allergic to codeine and I can't take anti inflammatory tablets either.

My GP prescribed me Nefopan but these make me really constipated which affects my bowel or if I take laxatives these make my bowel pain worse too.

Can't win really just could do with some pain relief though

I have struggled at work today with my pain, had a hot water bottle on all day.

Thanks again sweetie I really appreciate your advice and take on board what you advise me to do. I am very lucky to have you

Have a lovely evening

Lots of love

Janet xx

 

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