Good specialists recommendations please. - Endometriosis UK

Endometriosis UK

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Good specialists recommendations please.

CarolineAnne profile image
9 Replies

Can anyone recommend a specialist. I think I need to have a laparoscopy to find out for certain if I have Endo or not. I am so fed up of my worst symptoms. They happen around day 9 and I always seem to get what is like food poisoning symptoms and symptoms of bowel obstruction. It is making me extremely ill and I cannot eat. I have pain, sickness etc. I had a scan with a Gynae and found fibroids. One is 4,5 cm intramural on the top of my womb and my womb is retroverted. I have always thought that perhaps it could be pressing on my colon but most doctors dismissed this. The doctor I saw agreed that it could and offered to take everything out. This is not really what I want. I am also not too sure the fibroid is causing all my symptoms as every ovulation I am so sick. It starts off as food poisoning symptoms and progresses to feeling like I have an infection. It all seems to go after ovulation and my bowels work fine. I also feel like my womb swells up and have heavy dragging feeling. Pain and discomfort behind womb and stabbing in my bottom area. Also, leg pain. Ovulation is excrutiating. I have lost three stone over the last few years due to this happening every ovulation and not being able to eat. 

I don't really want to have a hysterectomy as I think it maybe Endo as years ago I had a doctor say I had nodules that were indicative of Endo. As I wasn't having major symptoms I didn't have a lap. 

I really would rather see a specialist rather than my Gynae. She was nice but quite rushed in her decision to whip it all out along with the ovaries. 

Thanks for any recommendations

Carolineanne x

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9 Replies
JeanOsborne profile image
JeanOsborne

Hi where are you in the uk? 

CarolineAnne profile image
CarolineAnne in reply to JeanOsborne

Hi

I am in the West Midlands but can travel anywhere. Thankyou :)

JeanOsborne profile image
JeanOsborne in reply to CarolineAnne

I will pm you as we are not supposed to name consultants on here.

CarolineAnne profile image
CarolineAnne in reply to JeanOsborne

Thank you :)

Hi, 

I'm seeing Mr Pickersgill at Stockport. He's a great surgeon, specialising in endo via excision not laser, and is very importantly really patient and careing too. Never feel rushed or like just another patient and feel like I can ask him anything. I refused the coil and he'd didn't push it in the slightest either. He lets ou feel like you're in control . I would highly recommend him if Stockport isn't too far. 

Hx 

CarolineAnne profile image
CarolineAnne in reply to

Thank you :) 

CarolineAnne profile image
CarolineAnne

Thank you :)

Bexstar74 profile image
Bexstar74

I'm also in the Midlands and initially had terrible rather rushed and bulldozed advice from a female consultant at Coventry hospital. Needless to say her treatment plan failed as I understood my body more than she did. After complaining I was referred to the Menstrual Disorder Clinic and am now seen by a Mr Ferrat Izzat. An amazing man who gives you information and let's you take control. I feel much more in charge now and now thanks to a careful decision I'm now into my 6th prostap injection- no more chronic pain.  Hope this helps. 

CarolineAnne profile image
CarolineAnne in reply to Bexstar74

Hi there

Sorry, only just saw this. I have seen Dr F I in the past. You are right about him, all the staff sing his praises too. I am glad you got sorted out. I had my appointment at the BMI on NHS. I wonder if the Consultant is the same. I saw a Dr G. Would be good to know. Thanks :)

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