I'm So Confuuuuuuused!!! : Hello everyone... - Endometriosis UK

Endometriosis UK

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I'm So Confuuuuuuused!!!


Hello everyone. Thanks for all your help so far. I am really confused and need some advice!

So I have symptoms that led my GP to say that I probably have endometriosis and said he didn't want to refer me to gynaeocology immediately because lap investigations were risky in themselves. So he put me on the progesterone pill a couple of weeks ago. After advice from people here and reading about others experiences, I wrote a letter to my GP and dropped it off this morning saying I would like to be referred to the Cornwall endo centre which is BSGA approved.

I got home and found an email that had arrived when I was out in response to an enquiry I sent to the nurse at this centre and now I feel silly for asking my GP to refer me. Because she said that they also operate in a symptom management way and wouldn't perform a lap just to diagnose or to excise unless the symptoms weren't manageable with hormones.

I am obviously totally fine to do what is medically best, but people keep telling me and I read peoples posts elsewhere about where they have been put on the pill for a number of years and the endo has continued to grow silently (without symptoms) and cause problems for when they come off the pill (e.g. to get pregnant in a couple of years, and then experience fertility problems).

I am lucky that my symptoms have been manageable personally, so I wouldn't be referred for a lap by the sounds of it. But the information I keep reading feels conflicting and ALL I care about it not compromising my fertility. I know that people also seem to get told different things about starting families earlier or starting them at the time they would have done normally.

So I just don't know what I should be doing or expecting.

4 Replies

Especially because I have also heard that the amount of symptoms you have doesn't necessarily correlate with the stage of endometriosis. So if it's already bad then I leave it and scar tissue etc forms... I don't know I am just confused about what i should be expecting to happen as from everythign I have read and advice I have taken this wasn't what I was expecting. Thanks!

Hi please look up Lindle on here she will know what to do. I say this because both your GP and the centre are wrong and Lindle will know exactly how to help.

Thanks so much Jean!

Thanks Linda I have messaged you! Sorry to take up your time again x

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