Refused a lap..: Hey ladies! Posting today... - Endometriosis UK

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Refused a lap..

Flaunas profile image
5 Replies

Hey ladies!

Posting today as Im tucked up in bed feeling bloody awful and am in so much pain.

I was referred to a gynae around christmas after been discharged from the hospital for being in so much pain!

Anyway,I had a transvaginal scan and the scanner said it looked like endo and wasnt cysts (ive had cysts before). So on the scan, you could see a lot of excess tissue around my bowel and right ovary, and a little on my left ovary.

So having my apt. With my gynae, he said because I spontaneously conceived my little girl (who is almost one) he refused to give me a lap as im proven to be fertile. Instead Ive been put on a back to back pill for 4 months, and if that doesnt work will start hormone therapy for early (temporary) menopause.

Sounded ideal at the time..but being that I am in so much pain, have awful periods and pain during and after sex and irregular spotting between periods I dont know if I feel annoyed with this outcome.

Oh, I also wasnt allowed a smear as im 23, but thought they might want to rule that out..

Any advice would be greatly appreciated xx

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Flaunas profile image
Flaunas
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5 Replies
JeanOsborne profile image
JeanOsborne

I would suggest you get a referral to a specialist at BSGE centre . Just because you were lucky enough to conceive doesn't mean you aren't suffering. If the endo is on your ovaries then if not treated could affect future fertility. The pill will only mask symptoms and the temp menopause injections can have lasting side effects. With a little one around it must be really hard but you need excision surgery to get the best possible quality of life . Good luck

Flaunas profile image
Flaunas in reply to JeanOsborne

Thankyou for your reply!

How do I go about getting the referal? xx

Tboag profile image
Tboag in reply to Flaunas

Hi hunny, you defo need a second opinion, and really. Need to be seen at a specialist endo centre, it's called BSGE, there is a list online,

Tell your GP that you believe you are suffering with endo, and you need to be referred to a BSGE specialist, you should take a list of your symtoms with you to the GP and a list of BSGE centres and the contact from the nhs that states that excision surgery is the gold standard of treatment, tell her you do not want to cover your symtoms with hormones at least not until you know what is going on and how bad it is if it endo,

There is a lady on hear called Lindle, have a look at her posts,

Good luck

Xxx

JeanOsborne profile image
JeanOsborne in reply to Flaunas

If you click on Lindle 's name she has all the info you need to get referral. Good luck

Yazza profile image
Yazza

Take a look on the bsge website to find your nearest endo centre take it to your gp and say you would like to be referred to them...

They may say no but you need to tell them that it is your choice and that they can't refuse you if needed print off patient choices from the NHS website.. I'm sure you will have lost confidence in your current consultant as I did so you need to reasearch and choose somebody who will understand you and this disease. X

Good luck sharon

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