Never ending questions:

[JessLeigh272]

Hello all,

I am 19 years old, and half been suffering with severe pelvic/ stomach pain and constant bleeding for around 2 years. I have been tried on everything - pills, combined pills, implant, and I am still waiting to hear about the coil. The pain and bleeding recently got worse, and I was admitted to hospital, where they finally listened to me about me believing I had endo, and I am awaiting a Laparoscopy, which should be around February time (pre op is 22nd January). I am currently on Naproxen and Norethisterone, and although the bleeding is under control, the pain is still really severe.. it's affecting my ability to go to uni or work, and sometimes I can't even walk myself to the toilet. Luckily I have my amazing boyfriend to look after me, but are there any tips or tricks for managing the pain.

Thank you so much for any ideas or help, most of the time I feel like I'm just being passed off or not taken seriously.

Love and Care, Jess xxx

[Lhendaguio]

I am so sorry you are in so much pain. I've always a hot water bottle during those really bad days comforting. Are you taking your Naproxen regularly, I find that when I take it regularly and not wait before the pain gets worse I can somehow manage pain under control. I've also altered my diet in that I don't eat red meat and avoid wheat /gluten based/ containing food. Best of luck and hope things get sorted when you have your Laparoscopy and make sure you get referred to an Endometriosis specialist centre once it is finally confirmed.

[JessLeigh272 in reply to Lhendaguio]

I'm currently in hospital because the pain was getting worse with no help from naproxen or cocodomal, I've had an internal scan and they think from what I've said and fluid around my ovaries that I've definitely got endometriosis.

Thank you so much for your help regardless.

[elisepalmer71]

Hi Jess. You can top up on pain relief with paracetamol, however, it sounds like you might need co-codamol which is a combo of codeine and paracetamol. You can take 75mg aspirin dailyfor the week before your period to break down prostaglandin levels but you must not take it together with the naproxen as they will irritate your gut. Practical things like hot water bottles helped me and helps My daughter feel a bit more comfortable. The other thing I did was rub olbas oil on my back or tummy to try and comfort me. Have you tried mefanemic acid for pain relief? And transanemic acid for the bleeding? The other thing is to try and get referral to specialist centre because then you can get access to pain consultant, psychological support because chronic pain can make you depressed! I have recently bought a book on nutrition and Endo, so dietary changes might help too. Sending you hugs Jess. X

[JessLeigh272 in reply to elisepalmer71]

I'm currently in hospital because the pain was getting worse with no help from naproxen or cocodomal, I've had an internal scan and they think from what I've said and fluid around my ovaries that I've definitely got endometriosis.

I have tried both mefanamic and transanamic acid before, but thank you for your help regardless x

[elisepalmer71 in reply to JessLeigh272]

Sorry to hear you are in hospital. Sending get well wishes. Sounds like maybe the mirena coil and perhaps tramadol could be options to consider. Xx

[JessLeigh272 in reply to elisepalmer71]

Thank you, I think my GP is considering the coil after my operation, and I was given tramadol in hospital and it helped, thank you so much xx