Some background first.
On Monday, I had my lap in which "severe" endo was found and I was given some rather lovely (not) photos of the disrruption caused by the endo. My consultant explained that because of this, he would have to refer me to a specialist in London to treat 'widespread' endo and that in the meantime, all they were able to do was drain the cysts on my ovaries (one of the cysts was 8cm). I am however told the cysts will return within 6 months. The positive thing to come out of all this however is that my fallopian tubes are not blocked as my partner and I are looking to try and start a family as soon as I am healed from the lap (I'm almost 28, he is 34) and blocked tubes was one of my concerns. I however still plan to see the specialist to see what he suggests as my current consultant seems to think we should start TTC "sooner rather than later" and before I have any further surgery. I will then be able to discuss my concerns further such as what the risks would be if I fell pregnant with things as they are (with a view to get surgery once family is complete) and what help if any we would get if I didn't fall pregnant naturally. My current consultant seems to think that if I had to resort to IVF, I wouldn't have to wait as long and priority would be given due to my circumstances and the fact we currently have no children but I'll be better informed when I get the referral to the BSGE accredited consultant and will provide a further update on this topic then, just in case there's any others out there in a similar position as me also wondering.
Now my problem is this and this is where I call on you lovely ladies for assurances/advice. Unfortunately, shortly after surgery, it became apparent I couldn't fully empty my bladder. I told the nurses this but they seemed dismissive and told me to 'relax' and it would come. 8 hours later, I was in excruciating pain (bladder, back and kidneys) and all the nurses kept doing was giving me increasing shots of morphine, which didn't help with the pain - I kept telling them that the pain was from not being able to empty my bladder, NOT from the surgery. To make matters worse, I reacted badly to the several shots of morphine I was given, which was making me violently sick and extremely nauseous. At 3am the following morning, I made a desperate call to my mum as I couldn't handle the pain any more and was worried they would make me OD on more morphine if they didn't address the real issue! My mum rushed to the hospital and after strong words were exchanged with the nurse who's 'care' I was under, they put a catheter in which found my stomach had been holding 800ml of urine and was at bursting point. The nurse had previously said she couldn't understand what was wrong as they "give all patients morphine after an op like this which always resolves the problem" and that she "didn't know what else to do to help".
Once the catheter was fitted, the pain disappeared almost immediately. The problem seems to be that the nurses were not listening to me when I was telling them the pain was due to me not being able to empty my bladder properly and not pain due to the surgery itself.
The catheter was left in for 24 hrs (had to stay in hospital for a further night), which gave me some time to rest and start my recovery, only when the catheter was removed a day later, I still couldn't empty my bladder fully and I was back at square one. 6 hrs after the catheter was removed, my consultant intervened and instructed the nurses to scan my bladder right away (under his supervision). I was now in "bladder retention" and still holding over 600ml of urine. My consultant explained that my bladder was in shock and that if the nurses had fitted a catheter shortly after I first told them I wasn't able to pass urine on Monday, this wouldn't have happened. Instead they just tried to mask the pain with morphine, which would't do anything for an overfull bladder! I have now had to have a catheter re-fitted to give my bladder time to rest and this will be removed this coming Monday. My question is, will my bladder recover from this?? I am absolutely petrified I'm going to be stuck with a catheter for the rest of my life!! Anyone else been in a similar position? I am aware that surgery can sometimes halt the waterworks process but surely the nurses should have listened and realised sooner that intervention was needed to help me pass water??
Apologies for the long post but any help would be much appreciated. I wish you all a pain-free day.