Going for hysterectomy : Hi ladies, Well I... - Endometriosis UK

Endometriosis UK

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Going for hysterectomy

fedupwithendo profile image
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Hi ladies,

Well I have reached a decision that I'm going to most likely have a hysterectomy. I'm 30 now and was diagnosed at 5 years ago (ish). I have always felt that my hormones have ruled my life.making me feel suicidal every 2 weeks out of the month with premenstrual dysphoric disorder. I have always felt like I'm trapped on a body and mind that doesn't suit me and only occasionally do I see a glimpse of the real me. That's the only way I can explain it to everyone. I've tried prostsap which seemed to help, but the main thing has always been the pain. I started on codeine about a year after diagnosis lap and endo being lasered. Now I'm up to 100mh mst and oramorph. I am a nurse and I've had to stop working for fear of error making and the serious consequences that could occur. I'm in bed because I'm tired either from the drugs or if I've had a busy day the day before.I've got a two year old son (not biological mine) and I'm missing out on him too. I am booked for lap in two weeks and strangely it's all just come to a head. They told me initially endo was on my right ovary. I'm now crippled over with severe pain on both. A horrid dull back ache and no period for four months. I look about 6 months pregnant with bloating. I don't know what's happening inside but I know I need my life back. If it is extensive on my ovaries then I just want them gone. I've always tried to take my time in making this decision as I have not carried a child myself, but the way I am, I would have trouble even trying! Im sorry if this seems all a bit random. I'm at my total whitts end. My mom had a hysterectomy at 30. She said it's the best thing she ever did. I've spent years ignoring that because I'm not her, but I feel like at this stage it's right for me too. I know it's notl a cure and it's also on my ureters, but that has never bothered me. It's just the ovary pain. Is there anyone out there who has had a hysterectomy and has benefitted from it and felt so much better?

Sending love to all xxx

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fedupwithendo profile image
fedupwithendo

Thanks for your reply. Perhaps I've not written the sentence clearly . I was talking I'm terms of pain. The endo on my ureters has never bothered me-pain wise. Not in terms of having it or any of the endo I have. I did read some of the info and I found the name of a specialist local to me. In the meantime I'd received an appointment from the gynea consultant I had seen months before for two weeks time. The pain just happens to be totally overwhelming when this appointment came through. If I have severe endo on my ovaries then I feel like removal of them would solve this problem.not to say that I need to keep watch on it continuing to grow on my ureters etc but I cannot stand the ovarian pain. Would a specialist excise all of this rather instead? Should my usual consultant already be aware of the protocol in terms of her performing a total hysterectomy on me? Thankyou for your reply.

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