I had my preop appointment yesterday for a diagnostic lap as well as potential treatment of endo if that's what they find. Lap is scheduled for 21st August.
I was expecting the pre-op appointment to be with the consultant but it was actually with a nurse and was much more basic than I was expecting. It was more of a "check your vitals/walk through of what to expect on the day" than anything else which is fine but not what I expected. I had some questions written down and she took me through some stuff but when I asked her what to expect post op in terms of maybe getting the coil or changing my pill etc to stop the endo from coming back, she basically old me that once they laser it off, I'll pretty much go back to normal and they won't do anything else or need to see me again. She said I would just need to see what my next period was like and take it from there but she would expect me to recover from the surgery and go back to happy, healthy me. Although this sounds great, it kind of goes against most information I've found for myself and I now feel a little disconnected from my treatment if that makes sense.
So far, I've seen about 3 different doctors at my surgery (one of which has been especially good with me and another that specializes in women's health who gave me a referral to a gynae really quickly). Up to this point, despite the fact that I had seen 3 different doctors, I felt that my symptoms were taken seriously and I was referred much quicker than a lot of people seem to have been so I was feeling pretty lucky. I then saw the gynae who seems pretty sure endo is what I have and was really good with me. I then saw this nurse who has made me nervous about what happens post surgery and knowing I will have another consultant doing the surgery, I now feel like I'm being passed from pillar to post and like no one is really following my case all the way through. I'm worried I won't have enough time on the day pre-op to speak to the surgeon and also post-op to make sure I get all the details of my diagnosis and where I go from here.
My symptoms have been present for around 4years though I only recently (end of 2014) started to put them all together and come to the conclusion it was something like endometriosis but since the end of 2014 to now I have had quite a dramatic decline in my health - exhaustion, constant abdominal pains around my pelvis, bowels and stomach as well as chronic constipation, poor concentration and being overly emotional and depressed. It's therefore really important to me that I feel in control of what is happening and that I feel there is going to be a positive outcome post surgery. Don't get me wrong, I know each case is different and I would have to be extremely lucky to have this lap be the end of it, but I want to feel positive about it rather than worried and nervous about the future.
Can anyone offer me some advise about what to expect in terms of time spent with the consultant on the day of the lap? Do they go over your symptoms again or discuss any developments from the initial referral? How do I make sure I get the most out of the discussion post op to know what to do next?
I am planning on having a notepad and pen for my partner to take down some info in case I'm still a bit out of it from the anesthetic. Is there any other advice or information from your own experiences you can give me?
Many thanks in advance