I don't want to believe it's back...

[ShortStuff88]

Hi ladies,

November last year I had a very successful third lap for endo removal (and cyst removal from left ovary). Afterwards I was given 2.5mg of Northisterone and had had the coil in for a year along with a diagnosis of Adenomyosis. The coil and Northisterone worked wonders and for a good 5 months I was almost pain free other than the odd flare up.

Back in June for various reasons the coil was removed and I was put on the mini pill which did nothing, I've now moved to Cerazette (on this for a month so far). For the past few months my symptoms have returned gradually which I put down to Adeno no longer being controlled by the coil/N'rone. These past two weeks however I've started to wonder whether the endo has returned. Up until today I've felt I've known that it hasn't, I've felt confident in my surgeon and told anyone and everyone that I'm endo free. Today though I feel a pang in my heart that its the endo causing me grief. The pain is different to the adeno, its higher and more aggressive.

I know you cant tell me whether I'm right or not but its been so long since I've had this type of pain that I'm wondering whether its endo or just the cerazette flaring the tissues? I used to be an expert in my pain, I'd had endo for 8years before diagnosis and had it removed twice before but after my third I was so confident I was rid of it for a good few years. Everything was so good after surgery, my life restarted and I embarked on a great journey, now I refuse to be another statistic of it returning but ...

Truth be told I'm not sure why I have written this. I know I can be given no answers but does anyone have any words of wisdom or experiences they wish to share?

thank you for listening

[rebeccacone]

I found exercise regulated my periods somewhat. It is randomly very painful to exercise, but more often than not I find it to release tension and cramps and gives my body a fresh, rejuvenated type of feeling. Also if you do have a painful session don't panic, go home and get some chocolate in you, you will work it off next time

[ShortStuff88 in reply to rebeccacone]

Morning what kind of things do you do when you're exercising? Do you have anything that works better than others?

I currently go to the gym on a Saturday morning and work every part of my body besides core. My other half is a PT and we go where he works, I'll ask him if we can go during the week too I love going,I find it helps take my mind off everything. Although I get the odd pang I cant help but push myself for which I get scolded by my partner lol! It would also be a great excuse for your chocolate suggestion

[rebeccacone in reply to ShortStuff88]

I start with a couple mile run then weights, sit ups, squats on a balance ball, more weights, couple miles cycling and thighs pushes. I work my core because I find it helps.

[GrittyReads]

I'm afraid I don't have the answers myself ... However, I would check all the posts on here by 'Lindle' (just scroll back though the questions - below ). She is amazing, and I'm sure she has posted several pieces on here about how laps don't necessarily remove all the endo, and that it can grow back. Also that careful detailed searching and 'surgical' removal, of all endo, is needed. She also has links to sites with details of all the nearest 'specific' endo specialists, as opposed to general gynaes.

I hope this helps and that you get sorted soon.

Take care.