Hello girls, I joined yesterday. My story so far... I am almost 45 had my large bowel removed at 29 it was all twisted and I had a cancerous tumour which thankfully was caught before it had spread... I would have had 3 years if it had been further on.my pain started soon after op finally diagnosed with adhesions years later, always had period problems and pain. 5 years ago I started on the decapectyl injection monthly injections, was also meant to get hrt but didn't. The pain went away so I got my left ovary removed it was stuck firmly to my far left hand side. Pain continued soon after the op adhesions were back had surgery 2years ago to cut through adhesions and was informed I also had endometriosis. It all made sense further surgery is too high risk so I am back on injections hrt hasn't agreed with me bleeding for weeks. But I need something to protect my bones so I am on the combined pill.... So far so good. I have also revised my diet I am wheat &dairy intolerant and have decided to try eating only easy digested food and Est little but often it has helped with the remaining pain. And I can only encourage any of you who have bowel pain to try altering your diet... We are what we eat.
All of this and I have a full time job.... Self employed too so days off are not an option but I would say it has kept me going when times have been hard. But totally empathise with those of you who cannot work.
My message to you all would be this I thought there was no light at the end of the tunnel but for me it looks like it is finally in sight, fingers crossed.we all know our own body so fight for what you want to try to help you. and remember you are not alone. X