Advice please : Hi everyone, I have been on... - Endometriosis UK

Endometriosis UK

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Advice please

gill1312 profile image
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Hi everyone, I have been on the decapeptyl hormone injection for the last 9 month along with livial hrt!! But I have decided to stop the injection as I was getting really sore heads that would have lasted a few weeks and was so tired all the time so my consultant said I needed to stop them......it was great at the time having no pain on the injection but it was just the side effects were too hard on me :( I was just wondering if anyone out there knows what the side effects are like and what happens when you stop the hormone injection??

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ANK1173 profile image
ANK1173

Hi there. I had my last injection of decapeptyl in January as I also found the side effects were getting too much for me. I didn't have any adverse effects from stopping the injection and hope it is the same for you. The endometriosis pain did however return and I will be having my 7th laparoscopy and 3rd attempt to remove an ovarian remnant next Friday. Best of luck. Axx

gill1312 profile image
gill1312 in reply to ANK1173

Awe thank you 😊 am just a bit worried that the pain is going to return really quickly and with a vengeance :( I was due my injection on Friday past but am starting to have cramps and still sore head. I just hope there is something els they can do for me as I hate the though of the pain again....and also going on holiday in July.xx I hope your opp goes well for you.xx

ANK1173 profile image
ANK1173 in reply to gill1312

Thank you! Fingers crossed for you and hopefully you will be ok for your holiday. Xx

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