Pointless post but I feel like I'm losing... - Endometriosis UK

Endometriosis UK

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Pointless post but I feel like I'm losing it...

gemp54 profile image
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So I'm still waiting on my gynaecologist appointment which isn't for another 5 1/2 weeks to even see.if they agree it could be Endo. I know some people have dealt with this for years before they get to this stage so I feel pathetic saying it after only 9months of pain but I'm completely losing it waiting for my appointment. I'm fed up with the nearly daily pain and no-one understanding and I'm so worried it could be something else. I have a very large proportion of the symptoms of Endo but I've never had any of them really badly until the pain more recently. I've had pain during sex but not always really badly and not all the time, I've had really heavy painful periods but again not all the time etc etc. I just keep thinking maybe I've been waiting almost 2months going down the wrong track and that its something more serious. Sorry for the pointless post but I needed to get it out. I'm starting to feel like I want to just stay in bed with the covers over my head for the next few months until I get an answer but with 2small children its not an option. I just wish I could put forward the clock until I get an answer even if that answer does mean I have endometriosis and have to go through a potentially long process of treatments and managing it. I would never have thought this time last year I would be wishing for a diagnosis of endometriosis buy at least that would give a name to my pain and mean its not something worse or all in my head! Xx

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gemp54 profile image
gemp54
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koby profile image
koby

I am in a very similar boat. I spent a lot of last year chasing the root of constant pins and needles to be told by a specialist that it was just from hyperventilating. After discussing it with my chiro she started working on my diaphragm, which was really tight... No more pins and needles. Now I'm waiting to see a gyno about the same sort of symptoms as you (no appointment through yet) and I'm feeling so low because I'm almost expecting to be mocked and sent home with a diagnosis of heavy periods. I know something isn't right with my body but I have no idea what it is and I'm not convinced anyone but my GP is taking me seriously. I hope the next 5 1/2 weeks pass quickly for and you get some answers.

Kaysha40 profile image
Kaysha40

Hi I'm kaysha

No post is pointless, it's real and it's honest I too have two 3 year olds and it's hard today I'm in bed on codeine I can't sit, I can't lie, I can't stand as the pain is too much and I can only listen to my kids having fun with there dad while I cry because I wish it could be me most days I fight it get up carry on but I have these days when I just can't I have no choice but to retreat and just except today's a bad day :-( I had my scan about three weeks ago and endo was picked up on ultra sound I just had a melt down there and then I was so relieved that I wasn't going crazy that it was real and my partner would really get that I wasn't just going off him I didn't feel like a real women that I was weak and lazy I know I'm lucky that it was picked up on the ultra sound because many women are not and I am aware that could mean the endo is quite bad but just to know that the pain was real I'm 40 now I started my periods when I was 9 I've been to doctors for years for them to fob me off tell me it was normal well it's not bloody normal! it's real !!!!!!!! just like your pain is real your feelings are real your sadness is real so please don't doubt yourself or think the feelings you feel are pointless. And it is ok to have days where enough is enough kx

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