Suspected Endo but getting run around from Gyne

Hi everyone! I have been lurking for a bit reading others experiences. But finally needed to share. So about 18 months ago hubby and I decided the time was right to start trying for a baby. By June last year I had 3 very early m/c so was referred to gyne. Around August started experiencing pain around ovulation. Month on month has got progressively worse. Had an HSG a month ago, which they couldn't complete due to the pain I was experiencing. The radiologist said there was clearly a blockage in my left tube. Letter a few weeks later from the nurse said they couldn't be sure it was a blockage as they couldn't complete the procedure so given the fact I have managed to get pg in the past they are happy nothing is wrong and discharged me back to gp! Luckily however my gp referred me back to gyne in Feb because of pain. She said when we got results of hsg that they treat subfertility and general gyne very seperate which is crazy! But my lovely gp wasn't happy with their response and is challenging this as we both feel I really need to have a laparoscopy to confirm endometriosis. The pain is getting worse every month to the point where 30mg co-codomol isn't cutting it and had to call nhs 24 last night and get an emergency appt for gp this morning. Was given buscopan to take with the co-codomol, we'll see how well that works.

But just want know if anyone's story is similar to mine and any words of wisdom or advice you can give. I don't know how all this will end but can only how for the best possible out come. We are already thinking ivf or adoption as a last resort.

Thanks for reading ☺

2 Replies

  • Hey, sorry to hear you're having such a bad time.

    The only advice i seem to have received is to keep at the doctors and the specialists until they do something about it. Almost until you're annoying them to doing something!

    I have been getting symptoms over the last 5years, every one of them points to endometriosis. However, as i think I'm younger than the average sufferer, every time I saw a doctor or specialist they assumed i was exaggerating and would think it was just a bad period so nothing was ever done.

    After 5 years, I have finally gone through every other thing they have suggested and multiple visits to a+e due to the pain (the number of sti and pregnancy tests ive had because they couldnt be bothered to test anything else is ridiculous!) and they have finally booked me in for a laproscopy.

    Its annoying, especially when feeling so ill and being in pain, but keeping on at them will hopefully get you somewhere. Also, do everything they suggest before hand as they like to tick things off the list before testing for endo as I've experienced.

    I hope this helps and I hope you get what you need! Good luck!

  • Thanks Sara, that's really useful to know. It must be awful for you to have put up with this for 5 years, I can't even begin to imagine putting up with this for any longer than I have already. Luckily my gp is excellent and I know will do everything she can for me. It's just very frustrating. I even looked at getting a laparoscopy privately but would have cost nearly £4000 which I totally can't afford.

    Thank you again and I hope you get all the treatment you need without having to fight for it.

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