Last year I had a diagnostic Laporoscopy to try and find out why I wasn't conceiving, I was told I had 'mild endo' which was treated and the lap & dye test didn't work which indicates both tubes blocked however they could not be 100% sure. About to start IVF treatment and recently read somewhere that Endo will come back and generally within 6 months. I had an HSG too in the hope it somehow helped unblock my tubes but my point is no one has ever told me it can come back and so quickly which is frustrating as been trying for so long and got hopes up after Lap/HSG another year on nothing but luckily our names reached top of the IVF list. So how do you know if it comes back? My consultant at the clinic replied ' well it was only Mild and it has been treated' . Also they wouldn't contemplate doing another Laporoscopy as too risky at my age to do more than 1 (am 39) Also they have ruled out tubal surgery again due to my age..... Of course I wish I tried for family sooner but perhaps if I was made aware fo this diseases and how it can affect your tubes while reporting all the symptoms over the years then I would have!! Every time I approach subject with my GP or fertility clinic it is brushed off as not important and nothing to worry about. However I have been reading up about ways to prevent it coming back, diet changes etc but I was not told anything other than it has been treated. I am doing my own research now as not taking their word from anything. Lesson learned as after years on contraceptives I had very heavy/lengthy periods and apart from an ultrasound was offered nothing and made to feel like I was causing a fuss about nothing !! Once diagnosed with Endo my research told me I had all the symptoms and had been back and forth to different GPs over the years and not once anyone spotted the signs or made me aware of this. I now feel the race is on as am almost 40 now and desperate for children. I think there should be more awareness of endo as I had never heard of it till I was diagnosed.
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