Went for my first visit at a specialist centre (4.5 hours from home) where they have agreed to do surgery on my uterer and bowel, however since I have had previous surgery there is less chance that they will be able to remove all the endo which has made me feel quite angry and sad. My local gynae had to stop after 5 hours of surgery as he went into my bowel and didn't have the expertise to continue. I am concerned about my kidney as this has been dilated for 18 months now and on the transvaginal scan showed my ureter was dilated to 1cm - the nurse had never been able to see a ureter on the scan before and it was so painful (still hurts now). I am being sent for a kidney function scan - has anyone had one of these? so I'm glad I will get it sorted but there is a bed shortage so no idea of timescale at all which is adding to my frustration.
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