Hi all I'm a new member and I already have a sense of relief being on this site by reading and able to share my story and not feeling so alone with this chronic disease.
I have suffered with endo for nearly 20 years and although I am very lucky to have a fabulous son (20 years old) I was unable to conceive again due to endo. I've had 7 operations some due to endo including a full hysterectomy. Although I had about 6 years of being almost normal after my hysterectomy I'm now been suffering again for the past 2 years because the scar tissue is round the bladder, bowel and maybe my kidneys. I'm having laparoscopy in two weeks and depending what they find open surgery after that. I've been off work since last November with a trial return February but I couldn't stand up to teach my students so I'm off again. I had steroids injected into my stomach last week to block the nerve endings and hoping for some rest bite from the pain but that hasn't happened. I'm very lucky that I have a very supportive family and friends but it's good to be in contact with women who can understand more because you are all experiencing the same. If anyone would like a friendly chat or advice please don't hesitate to message me. Hope you all have a good day. ☺️Thank you for reading my very long message. X
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julieoc71
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I'm on HRT Evoral Patches and my lap is being done by a gynaecologist who specialisers in endometriosis. I had scar tissue left round the bowel when I had my hysterectomy 8 years ago. Then last December I had an interal ultra sound scan which identified more scar tissue at the back of my bladder. The location of pain indicates that my kidneys maybe affected too. X
No they don't but I will asking for a blood test tomorrow. The doctor that referred to the treatment in Nottingham did mention about the HRT affects and yes they will review my meds after the ops. Thank you for all the information. Take care x
The Treatment centre is privately run although I've been referred to as an NHS patient. My problems caused by Derby Royal. After an emergency C section and I had injections afterwards.
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