A life with Endo: Hi all I'm a new member... - Endometriosis UK

Endometriosis UK

70,130 members51,941 posts

A life with Endo

julieoc71 profile image
4 Replies

Hi all I'm a new member and I already have a sense of relief being on this site by reading and able to share my story and not feeling so alone with this chronic disease.

I have suffered with endo for nearly 20 years and although I am very lucky to have a fabulous son (20 years old) I was unable to conceive again due to endo. I've had 7 operations some due to endo including a full hysterectomy. Although I had about 6 years of being almost normal after my hysterectomy I'm now been suffering again for the past 2 years because the scar tissue is round the bladder, bowel and maybe my kidneys. I'm having laparoscopy in two weeks and depending what they find open surgery after that. I've been off work since last November with a trial return February but I couldn't stand up to teach my students so I'm off again. I had steroids injected into my stomach last week to block the nerve endings and hoping for some rest bite from the pain but that hasn't happened. I'm very lucky that I have a very supportive family and friends but it's good to be in contact with women who can understand more because you are all experiencing the same. If anyone would like a friendly chat or advice please don't hesitate to message me. Hope you all have a good day. ☺️Thank you for reading my very long message. X

Written by
julieoc71 profile image
julieoc71
To view profiles and participate in discussions please or .
Read more about...
4 Replies
julieoc71 profile image
julieoc71

I'm on HRT Evoral Patches and my lap is being done by a gynaecologist who specialisers in endometriosis. I had scar tissue left round the bowel when I had my hysterectomy 8 years ago. Then last December I had an interal ultra sound scan which identified more scar tissue at the back of my bladder. The location of pain indicates that my kidneys maybe affected too. X

julieoc71 profile image
julieoc71

I don't know my oetradiol levels and the Evoral patches contain estradiol and norethistetone. I'm 43 and yes the scar tissue is endo.

julieoc71 profile image
julieoc71

No they don't but I will asking for a blood test tomorrow. The doctor that referred to the treatment in Nottingham did mention about the HRT affects and yes they will review my meds after the ops. Thank you for all the information. Take care x

julieoc71 profile image
julieoc71

The Treatment centre is privately run although I've been referred to as an NHS patient. My problems caused by Derby Royal. After an emergency C section and I had injections afterwards.

You may also like...

Endo is ruining my life

just very close to having a breakdown. I'm back struggling with pains I experienced before having...

Effect of endo on sex life, advice welcome!

been manageable (mainly because of the intimacy it creates). Over the last year so, however, it has...

Life after Endo surgery

so much pressure around that question when you have Endo and I’m struggling to deal with what the...

Endo is completely ruining my life!

had a hysterectomy straight after. I have been in denial for a few years of having it myself,...

constant Endo pain ruining my life

This is not normal, I’ve lived with this for 15 years worst it’s ever been. Can’t get in to see...