Endometrial hyperplasia : Hi I recently... - Endometriosis UK

Endometriosis UK

70,135 members51,943 posts

Endometrial hyperplasia

Sarajane1 profile image
5 Replies

Hi

I recently went to my dr to have a mirena coil fitted but she couldn't do it because my uterus cramped too much. She sent me for a scan and when I went back this week she scared the life out of me. The first thing she said was I have endometrial hyperplasia which 'could be pre cancerous' she also said my womb is longer than normal, about9/10 cm and there is a thickness at the top of my uterus which 'hopefully is just a polyp' I have to go to hospital for a biopsy and the appointment has come through for may. I'm hoping that the fact I wasn't booked til may means its non urgent and I don't have a high risk of cancer, but since leaving the doctor I can't stop thinking about it. She wasn't exactly reassuring. Does anyone else have experience if endometrial hyperplasia. And should I be worried? I'm 46

Written by
Sarajane1 profile image
Sarajane1
To view profiles and participate in discussions please or .
Read more about...
5 Replies
smoll85 profile image
smoll85

Hello,

I was diagnosed with Endometrial Hyperplasia in 2011. I would bleed heavily, have a period then not have one for months, I bloated up as if I were pregnant and I was just simply miserable. I'm 29 now! It's painful and can be very scary that's all I thought of daily as well. What it is, is your eggs don't release correctly, instead they stuck to the walls of your uterus an create a spider web affect! I would request one done sooner! Once you have a period the lining cm will decrease but will increase again! It's always worse around your period even if you don't have one. I had a laparoscopy with D&C done! I felt great for 8 months then it came back! You need to be put on a very low estrogen birth control pill to control it! You'll go through several surgeries maybe, but have you considered having a hysterectomy?

Sarajane1 profile image
Sarajane1 in reply to smoll85

Thanks for that. I'm going back again to see my actual GP as the dr I saw isn't my normal one, to see if he can reassure me. Hysterectomy hasn't been mentioned but if the gynaecologist suggests it I will definitely just go for it and then hopefully problem solved. I hope your problems have gone now

smoll85 profile image
smoll85 in reply to Sarajane1

Good! No, they're not gone. Endo is with you the rest of your life. You'll feel good for months an then a flare up comes. I wouldn't take any injections that'll through you in menopause if they suggest that! That's a temporary fix! Sometimes after having a hysterectomy you can still feel symptoms. I was told I couldn't have kids again due to this, I am now 5 months pregnant. I rejected all injections an only stuck with the low estrogen pill and the surgery! Hope everything goes well here's a number where you can learn all about it 1 (877) 980-7246! Good luck

Sarajane1 profile image
Sarajane1

Thanks and congratulations on the baby x

smoll85 profile image
smoll85 in reply to Sarajane1

You're welcome and thank you! 😊

You may also like...

Anyone had endometrial ablation?

Hello ladies. Have any of you had endometrial ablation ? Would you recommend it as an alternative...

endometrial ablation mistake

infertile. I feel so stupid. She asked did i have children I said one. She said avoid getting...

New here, thick endometrial lining?

ladies, I'm currently having scans to investigate why my periods have become so painful, I'm 33 and...

Endometrial ablation

anyone had an endometrial ablation? I am having the procedure next week and am hoping for a quick...

Help needed before Monday re endometrial ablation.

ladies I'm hoping someone can help me I'm due to have an ablation done on Monday morning but have...