As you all I am a fellow endo sufferer, and have been for the past two years. After a failed lap in the UK where I was completely messed around by doctors, I've had a successful one in Austria in April where they discovered that I was stage 3. A routine operation which shouldn't have taken longer than 1 hour ended up taking 3 hours while they cut everything out. Knowing that I will have to endure many more operations in my life and being fed up of not being taken serious and there not being enough awareness, I have started working on a project.
I am a digital journalist in the making at Goldsmiths University and I want to create a website with stats and information and most importantly also some opinions and stories of REAL women! If you are interested in helping me create more awareness for endometriosis sufferers, please get in touch! My email is digijournostudent(at)gmail(dot)com . Or message me on here.
I know how horrible and isolating it can be, because no one knows what you even have and I would like to change that.