I am 67 and have had the very bad luck to have had severe endometriosis and systemic lupus. I am a very experienced patient and have learned a lot on both very difficult roads. I am appalled at just how little things seem to have moved on for both conditions since I was eventually diagnosed. The desperation of sufferers posting on here really angers me. We need to instigate a buddy system whereby experienced articulate people can support others at the start of their journey. I suggest a data base of people willing and capable of supporting others at hospital visits as a start. I have been an inpatient on more than one occasion and come across another younger woman utterly distraught because she feels no one is listening to her and taking her story seriously. I am lucky enough to have been able to listen, process what I hear and give some much needed support. I am not a doctor but I know an awful lot about endometriosis and SLE. I wish I didn't but I cant undo the experience of the last 40 years. Can I and others like me help?
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