Endometriosis UK
34,140 members30,522 posts

In my life for 22 years and becoming more significant

Hi, I've just signed up today, searching the web in desperation for answers and came across this community. I've read lots of supportive posts so I thought it would be rude not to introduce before I join in!

I'm off sick from work at the moment with 'just a cold' and I'm so glad I am because my cold has coincided with the worst period I've ever had in my life!!!

I'm 41 but have probably suffered with endo since I was 19. I was diagnosed at 22 and told I was infertile. Well, I have a 16 and 15 year old so they got that wrong!!!

I was cleaned up in 3 places during my laparoscopy and given some kind of medication, it was so long ago I don't recall!

I've been having pelvic shooting pains, vaginal shooting pains, pain down my legs, back pain, waist pain pretty much all of my reproductive life. I had another laparoscopy 25 months ago, and again had ablation in 3 places.

The 2 laps have never really seemed to have done much. I've had coils fitted, I've had depo and I've taken the pill to stop my periods. I stopped the pill a few months ago as I'm sick of putting my chemicals in my body and already taking other meds too, and I thought it was all too much for my body.

For several months now I have been suffering pain in my ribs, my breast bone and upper back. I was diagnosed with costochronditis. Which I accepted - I mean, why not have yet another condition that nobody can really explain?!!! :) (I also have several lipomas, also a mystery to the medical world!)

But something has occurred to me during this particularly painful period I'm having right now (screaming out in when the pains shoot, agonising toilet visits, hurts to lie down). My 'costo' is also currently the worst it has ever been, and I've been left wondering if it's not costo at all but endo in my chest wall? Does anyone else out here have endo in their chest wall who I can talk to?

I've been backwards and forwards to my GP, and we are 'managing pain' together (I also have a scoliosis and frozen shoulder) and she says we may just never get to the bottom of all of the different types of pain I'm in for one reason or another. (I think she thinks I'm a lost cause and that I imagine my pain, she has put me on pregablin!)

I don't want to manage pain - I want to get to the bottom of it and live a normal life!

So that's me! :)

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