Finally getting somewhere....or at least ... - Endometriosis UK

Endometriosis UK

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Finally getting somewhere....or at least I hope

cabbage12 profile image
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I went back to my GP yesterday as my pill is nearly done and i wanted to find out what my next steps are for diagnosing my pain. After my horrible experience at gynecology where they washed there hands of me, I have been referred to General Surgery to find out what is wrong with me and what is causing my pain. My GP even read the letter he sent to them to me, and put in it that is think it could be endo. Lately my pain has been worse, to the point i had to leave half way through a lecture and doubled over in the bathroom, almost crying ( didn't help that it was a lecture about pain and assessing pain, ohh the irony). He believes that i might need a collaboration of gyni and general surgeons to get to the bottom of my pain. He said that because i am a young women (19) with non specific abdo/ pelvic pain it is going to be a nightmare to diagnose. I just want to know what is causing my pain and how, if it can, be stopped.

However on the down side, this is the second GP that I have seen for this problem that is leaving the practice, which i don't think is helping my situation. MY first one who did the referral to gyni left a few weeks after i saw her and now the one i saw yesterday is retiring. Why is this happening to me. He did tell me to look after myself as I was leaving which i thought was really sweet of him.

At least this is a step in the right direction to a diagnosis and treatment. or at least I hope so.

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KatieTattie profile image
KatieTattie

Gosh you sound like me when I was 19 years old. I've only just been diagnosed with endo at 32 years old. If I could say one thing to my 19 year old self it would be KEEP PUSHING! I was given old IBS diagnosis and had every gastro test going all negative to be told 'some young women just feel more pain than others'! I wish I'd have pushed the gyno route more rather than accepting my daily pain. I really hope you get answers as I hate to think of anyone else having to go through what I did. My endo was not diagnosed till my second lap. I would advise you research a consultant who has a special interest in endo, you can usually find this out by looking at your local private hospital and they usually do nhs too. Ask your gp to refer you to that person. Good luck x

KatieTattie profile image
KatieTattie

Gosh you sound like me when I was 19 years old. I've only just been diagnosed with endo at 32 years old. If I could say one thing to my 19 year old self it would be KEEP PUSHING! I was given old IBS diagnosis and had every gastro test going all negative to be told 'some young women just feel more pain than others'! I wish I'd have pushed the gyno route more rather than accepting my daily pain. I really hope you get answers as I hate to think of anyone else having to go through what I did. My endo was not diagnosed till my second lap. I would advise you research a consultant who has a special interest in endo, you can usually find this out by looking at your local private hospital and they usually do nhs too. Ask your gp to refer you to that person. Good luck x

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