I am an only child due to this illness, my mum had it so bad she nearly died giving birth to me and had a hysterectomy straight after.
I have been in denial for a few years of having it myself, doctors had told me I had a pollyp then HPV (I have been vaccinated) but deep down I knew they were wrong. I am the same as my mother I have endometriosis. Started with pain and bleeding durring sex now to pain when I use the bathroom, I had been on the pill since I was 12 (due to bad period pain) and my gyno told me that was good because it helps prevent it from getting worse, however the lining if my endomentrium had become so thin that it was bleeding at any slight touch causing a black period a week before my normal period, she told me to stop my pill for a few months to let it grow back and then have the mirena IUS inserted as it is the best treatment for this illness. I stopped my pill for 5 months and the black bleeding started again, went and had the mirena inserted (seriously hurt) and I have now had a black period for 3 weeks and cramp. I feel so very depressed as I just want this to end, u use to be so vibrant and full of life and sexy but now if feel dirty and when I become aroused I am in pain, I cant be intimate with my partner (who is the best guy in the word) it is a reall strain on my relationship. I just wanted to be normal.
Does anyone have any advice, I dont want to be on pain killers for the rest of my life, is there anything I can do that will make md feel even slightly normal?