Has anyone ever had organs separated due ... - Endometriosis UK

Endometriosis UK

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Has anyone ever had organs separated due to endo or adhesions?

xKatie86x profile image
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One ovary is stuck to my abdominal wall and the other is embedded deep under my bowel. The dye test did not go through my tubes and I am wondering if this could just be due to everything being so stuck? Has anyone here had this op and gone from closed tubes to open tubes as a result?

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xKatie86x profile image
xKatie86x
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Alwaysbepositive profile image
Alwaysbepositive

Hiya. Yes I had exact same thing and had surgery for this (frozen pelvis) Feb 2013. Ended up having both Fallopian tubes removed due to hydrosalpinx and damage to he tubes. Severe adhesions in my case could have been cause by endometriosis.

Hope23 profile image
Hope23

Hi

I have had a recent laparoscopy with the Endom & Bowel Specialists, as my bowel was covered in endometriosis and stuck to the my left ovary - once they got in they unfortunately couldn't get to the left tube and ovary as it they were completely hidden by the bowel and all 'mushed' up underneath. It would have been too risky for them to operate further in that area as I may have got bowel damage. They cleared up the endom on the bowel as best as they could - and also cleared up the right side pretty well (took away a big cyst & cleared endom) so I am now running on 1 ovary. I also have hydrosalpinx, blocked tubes so I will definitely need IVF, my egg count is very low too.

Assume all of your troubles were found during a lap? I think taking away all the endom may still not solve the block tubes issue - taking away endom can leave scarring on your biits and bobs in there which can cause problems with fertility - I am not sure if pain is your main issue or infertility?

Maybe check with your surgeon to see if you can have a further dye test after your lap and after everything has been cleared up. But as with me, they may not be able to get to the ovary/tube which is hidden by the bowel. I don't know how old you are - but remember if you want a baby and you do need IVF because of blocked tubes etc - they only need access to 1 ovary to get your eggs! As long as your egg count is ok anyway

Sorry to hear your troubles

Good Luck

X

ShortStuff88 profile image
ShortStuff88

Hi, I too had a very similar experience nearly 3 years ago. I had a diagnostic lap in May 2011, they diagnosed endo on right tube, left tube, left tube stuck to my sigmoid colon of the bowel.. When I went for my corrective lap in Oct 2011, my left tube and bowel had both become stuck to my abdominal wall and my right tube had started to join with my bladder. They separated the organs and removed what they could. My left tube had been inactive but once they'd freed everything they did the dye test - by some miracle it was back working some 3hours later.

I hope this helps reassure you that there is hope xx

Impatient profile image
Impatient

Every single endo patient with advanced or severe endo will have adhesions. As adhesions never stop growing this will always mean where ever they grow from they will stick to anything and everything near by - sticking multiple organs together eventually. It would be extremely rare for anyone with all but the most minimal of endo not to have adhesions sticking things together.

Furthermore every one can be subject to having adhesions grow whether they have endo or not. Adhesions can be triggered by any tummy trauma, a child jumping on your stomach, you crashing in to a door handle or some piece of furniture, over stretching at the gym, just about any trauma or injury to the tummy and every surgery to the tummy can cause adhesions.

Blocked tubes cannot be unblocked - well not for long anyway - adhesions just grow again. Any blockage is best by-passed by having IVF or assisted pregnancy when the time comes to try and conceive.

I have not yet come across anyone who had blocked fallopian tubes having them successfully unblocked.

Adhesions are part of the healing and scarring process for wound to provide cushioning support in the event of a repeat trauma. There's no way to cure them- they can be cut back, or lasered back- but will still regrow.

barriers can be placed between organs to prevent them resticking together again too soon. The adhesions grow and stick to the buffer or barrier for a while - but in due course will grow round any such barrier and inevitably stick to something else.

being realistic - if the tubes are blocked inside then jump to IVF.

if the tubs are just blocked at the far end near the ovary, then removal of the adhesions or cysts or whatever is blocking the route would be a less risky problem.

twekkies profile image
twekkies

I had my bowel and womb seperated 18 months ago and it seems like i have more bowel problems. I still need to let my gynae know as i'm sick of operations. 10yrs ago my tubes was twisted around my cervix but was seperated and is still today in their places. All the best...

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