Hello everyone, I would be grateful for any advice or experience
I was diagnosed with Stage 4 Endo on the 16th Jan (Confirmed via Lap) 12 weeks on I now have pain where I never had pain.i had my first Zoladex on the 17th feb, no increase pain in the first 3wks, however did bleed for the full month. On the 21st March had my 2nd injection and had lots of side effects itching, hot flushes, weight loss/gain, headaches, nausea and swelling of my legs. Still have not stopped bleeding. i went to my pilates session on Monday and was not able to do a lot of the basics, then tues at physio, he was not comfortable in going ahead with my session. I saw my Endo consultant last night I'm now having an ultrasound to rule out cysts on my ovaries.
The consultant is also sending me for a 2nd opinion in order to make a decision on whether I need more surgery now to remove the remainder of my Endo on my bowel. Secondly to also consider a hysterectomy and is that right for me etc...
My case is getting very confusing as my scoliosis has joint in and my hip is twisted, post the Lap! If there is anyone out there that has Congenital scoliosis (S shaped) and Stage 4 Endo, I would love to hear from you and your experience. Also did you scoliosis get worst post hysterectomy?