Can it be back again?!: I had a lap in... - Endometriosis UK

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Can it be back again?!

Bride2be profile image
7 Replies

I had a lap in September to remove some adhesions which we're sticking my ovaries and bowel together and all seemed to get a lot better following the op- no more constant pain.

However, it feels like the ripping, constant deep ache is back- plus hip and lower back pain. Should I go back to my GP? Can it really be back after 6 months? :(

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Bride2be profile image
Bride2be
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7 Replies
hayls profile image
hayls

Hi

I don't want to be the bearer of bad news but yes it could be due to your endo. I had extensive excision of endo last summer, it was a lot of work so ended up being done across 2 ops 8 weeks apart. Amongst many other things, my ovaries were unstuck from my pelvis during the first op and anti-adhesion fluid was used etc. However when my surgeon went back in 8 weeks later to complete the rest of the surgery he found my left ovary had already got restuck, this time to the side of my uterus. He freed it again and removed the adhesions around it (as well as separating uterus and bowel and loads more) and used 3 times as much anti adhesion fluid and a barrier method to help prevent it getting stuck again, but I had to have a scan 5 weeks later and this showed that my left ovary was stuck yet again, this time to my abdominal wall. My surgeon told me that ovaries in particular are very sticky and susceptible to adhesions for about 2 weeks after surgery (and after this but worse than normal in first few weeks) so unfortunately there is a risk they will restick to something in the wrong place, although the surgeons use things to help prevent it they can't really stop adhesions, anti adhesion fluid has a very limited effect in my experience and the surgeons can't stop new adhesions/scar tissue which will always develop after surgery.

If I was you I would try to get a further follow up appointment with your gynae to review things x

Bride2be profile image
Bride2be

I had a feeling this might be the case. Time to go back and start the battle for an appointment! My husband and I have been TTC for nearly a year so the doc didn't fit the Manira or out me on any contraception. Do you think this is another reason for the pain returning?

K

hayls profile image
hayls in reply to Bride2be

Hi

My husband and I are ttc as well (3 years now with pause whilst on prostap) so Im not on anything to stop my periods either and its a constant worry hanging over my head as I know that my endo will be redeveloping etc every month that passes. Another thing is that your surgeon may have missed some endo, it could have been a tiny bit but over 6 months could have grown etc. Sorry I sound so depressing, but its nice to know we are not alone x

Bride2be profile image
Bride2be

It was so depressing to feel that pain reappear after it finally going away. It would be so great if we could conceive soon as I know what you mean about the worry of not stopping periods. My surgeon did discharge me but she did say that if the pain returns that I would need to see a gastro doc as the bleeding and ashesions were on my bowel?

It is nice to know we're not alone x

Jolene2905 profile image
Jolene2905

Hi,

I was very similar in the my ovaries were stuck and widespread endo, had a lap but pain came back, had another lap and got bit better, just happened to mention to my osteopath that we were trying for a baby and about the endo and she spent a couple of sessions working on that area or my stomach, pelvis etc, it was quite painful but helped to shift things into place a bit more and I got pregnant a couple of months later, it may have been coincidence but it the treatment also greatly reduced the pain in the couple of months conceiving, maybe worth a go?? I was then pain free for after four years after the birth - heaven sent! Pain came back last year and had endo on my bowel, had a big op in November to remove the section of bowel and have just found out I am pregnant, so don't give up x

stevieflp profile image
stevieflp

I do wonder why the surgeons dont seem to keep up with developments in endo surgery - Mr Trehan has been doing a procedure he pioneered called "temporary ovarian suspension" for quite a few years now. This is where a large looped stitch is put around an ovary that has been freed up and it is pulled towards the front of the abdomen away from healing areas and sits there for about 10 days. When the stitch is released, the ovary/ovaries fall back into place and are not likely to get re-adhered. Why cant the others do this simple procedure that works!!

Bride2be profile image
Bride2be

Wow, that sounds amazing. It does seem crazy that medical professsionals don't want to keep up to date? I got the feeling when I had the lap that I was a long line of women having the same procedure that day and the doc was just going through the motions.

She said that there was some internal bleeding and she wasn't sure where it was coming from but that it was sticking my ovaries to my bowel!

Just don't know whether to see a gastro doc or a gynae next to try and stop the pain?

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