Anybody suffering for endo inside the bladder? Mine is bleeding almost all month...

[Joey_Eds13]

I have a 3cm (ish) nodule of endo sitting on the inside back wall of my bladder. My symptoms have become increasingly worse over the last 3 months and now I'm having blood in my urine almost everyday, before it was just before and during my period. The pain is horrendous during my period but just a niggly ache the rest of the time. I only have to take pain killers during my period.

Has anybody experienced problems like this? I'm seeing my urologist next week, and I really feel that it should be surgically removed, even though I know it would be a big op I feel it's necessary. Not sure he'll agree though!!! I want to avoid hormonal treatments as we are trying for a baby. I'm fortunate that endo has not effected my tubes, ovaries or uterus, so I feel time is of the essence with regards to my fertility.

Any advice of this would be appreciate. Or anything I should be asking my urologist next week. Thanks xxx

[Impatient]

If you are trying for a baby and get pregnant - that should stop that endo from bleeding - it doesn't know it isn't in the womb - so will respond as the endo cells correctly in the womb will respond to the pregnancy.

That will sort you out for many months.

It is far better to have a baby 1st than the bladder surgery just because of the lengthy time it takes to recover from bladder surgery and a messed up electrical system causing you to not have much control in the peeing department.

I wasn't pregnant but had some work done on the outside of the bladder during a big hole op - it took 17 months for my bladder to start working properly again by itself without assistance.

Pregnancy won't kill the endo but should render it inactive and not bleeding and irritating the bladder lining for a long time so speaking as someone who has had a lot of issues in the peeing department after surgery I would definitely carry on trying to conceive than risk a big surgery which will mean taking at least 6 months and quite possibly a year or more to recover from. It was no picnic.

[Joey_Eds13]

Thank you for your response. I'm just concerned that the bleeding from my bladder is constant not just during my period, and because of that I'd have trouble falling pregnant in the first place. Am I right in thinking that because the bleeding is out of sync with my cycle then getting pregnant would prove difficult? Or am i just worrying unnecessarily? I had a hsg (all normal!) done a few weeks back and I was talking to the consultant after he seems to think that the endo would get irritated by the urine causing it to bleed. I'm at such a loss with whole thing. Did you manage to fall pregnant with bladder endo? X