Am I waiting longer than I should be? - Endometriosis UK

Endometriosis UK

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Am I waiting longer than I should be?

Hope1234 profile image
4 Replies

Hey ladies,

Keeping it brief i've had symptoms of endo since I was 15 (now 22) but only at the end of last year was i referred to a Gynaecologist to see if they will agree and put me in for an explorative lap. I know its only been 5 months but is this a normal time to be waiting for a referral? I just feel like i'm constantly waiting to be waiting for something else.. I know everyone’s journeys have been long but after suffering for 7 years and still waiting for at least a diagnosis I don’t know what’s normal and what’s not anymore

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Hope1234 profile image
Hope1234
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4 Replies
DrWatson profile image
DrWatson

That seems like a long time to me but I've generally been seen fairly quickly once referred (well less time than 5 months). Can you ask your doctor how long the waiting list is or phone the hospital to check with them? I've phone the hospital before to ask when I'll get a letter about an appointment. I always worry there is a chance that something has gone wrong and I'm not even on the list!

Hope1234 profile image
Hope1234 in reply to DrWatson

Thanks for replying! Yeah I've called twise and they always just say I'm on the shortest list :/

It's aweful spending all this time just doubting myself and not knowing wheny gp is sure it's endo and I have family history of it but I'm just waiting to see someone who will put me on another waiting list to find out for sure and get proper treatment :/

DrWatson profile image
DrWatson in reply to Hope1234

It is immensely frustrating. I thought I'd feel much better when I had a diagnosis and I did in that I knew I wasn't going mad. But then finding out more about the condition and how hit and miss treatment can be is somewhat dispiriting.

Hope1234 profile image
Hope1234

I can imagine that will be a hard part :/ and I'm kind of anticipating it, I just want to know I'm not a hypochondriac or have a crazily low pain threshold or I don't know :/ just so much goes through your mind waiting. And the pain wears you down so much, I'm sure you know though! I wish things were just a little quicker or we could be updated more!

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