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Endometriosis UK
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Awful pain in left bum cheek and hip.

I had my lap 30th dec 2013. They and endo found now think it's back with the pain I'm in. The pain was alway left side mostly and now I'm getting awful pain in my left hip and bum cheek could this be because of endo spreading? The endo was found on the ligaments that hold the uterus up

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I know it's not much help but I feel your pain I also suffer it in my left bum cheek, beggining to get me down. I've been refered back to gyny so see what they have to say.

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Saw my doctor today I'm having ultrasounds and X-rays to see if I have kindest stones and if not it could just be that my endo has spread bsvk that way xx

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Hi Shell123,

are you still in pain? Or did you sort it? I'm experiencing the same pains and it got worse after my second lap. xx

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I get this too...it is horrible and I haven't found an answer for it yet. I hope that you manage to find a way to ease it soon

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Saw my doctor today I'm having ultrasounds and X-rays to see if I have kindest stones and if not it could just be that my endo has spread bsvk that way xx

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any news on these pains Pinkgirl? Has it eased up with time? Mine are pretty bad too on left hip, front thigh, groin, bum cheek... :( x

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Following 3 laps in quick succession a few years ago I developed very sore hips and couldn't walk that far. I put it down to the ops and didn't bother doing anything about it. Eventually things improved. But a couple of years ago endo symptoms started to return. I also started getting pain in my right bum cheek, hip and down front of my leg and always seemed to be triggered by my period. I was worried that endo had spread to muscles or nerves in this area which can be the cause of this type of pain.

Fortunately my pain was more 'structural' and an osteopath found I was completely twisted. This was tensing my piriformus muscle in my right bum cheek and radiating to other muscles. He massaged me back into alignment in 2 sessions and all the pain has gone. It seems the problem emanated from my lower back which is also an area that many women with endo have pain.

Endo can spread to the sciatic nerve but it is rare. Before investigating this type of endo spread, it might be worth considering a visit to a good osteopath to check if anything is out of balance.

Even though my endo has not spread to the sciatic nerve I do feel that the endo did not help matters. I was annoyed with myself for letting this go on for so long without getting seen to and only when things were put right did I truly realise how stiff my whole body had been.

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Thank you for this. I actually have problems with my back it curves to the right and I have a buldging disk on my sciatic nerve. I saw a lady who does correctional massages and it really helped. My spine straighten up. I was hoping to see her again soon but because if my pain I now can't lie in my tummy. My doctor is sendig me to have scans to see if I hae kidney stones and said if I dot it could be that the endo has spread xx

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Hi Princessm,

I didn't mention all the detail in my case. My spine was also curved. Bear in mind I'm not a medical person and I do not know all your details but what you have described sounds like scoliosis. You can either be born with it or develop it perhaps due to an injury in which case it's called 'functional' scoliosis and can be corrected by a good osteopath. I had functional scoliosis. If you were born with it that is more difficult to treat.

The treatment I had also involved lying on my back. A good osteo might be able to help you even if you can't lie on your tummy at first.

Any skeletal misalignment would have an effect on the proper functioning of your internal organs and won't be helping your endo.

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Yes my doctor and physio said I had scoliosis and because I one can think if a time I hurt it they are sayingits from birth however they never did X-rays to check this xx

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Thank you for this article.

I've just received an MRI report and more recently have been having more issue with lying on my tummy due to a protrusion in my upper abdomen(the Scan was of my lower spine) but now I think I understand that it may be related.

It showed a mild curvature of my five lower lumbar type vertebrae.

But I'm questioning what came first the chicken or the egg.

Because I have had over the course of 17 years and 4 surgeries for edometriosis and related issues have found relief in the back pain tentatively after each. So when my back pain returned my first instinct was to see a gynecological specialist about a diagnostic lap again to see if after my hysterectomy 11 years ago, if I have adhesions again or perhaps some endo that has reactivated due to a possible surge in estrogen now that I am nearing the age of natural menopause (didn't have my ovaries removed)I have also at the same time been dealing with ovarian cyst ruptures, and had bilateral cysts.

I read about nonstructual scoliosis caused by inflammatory conditions like appendicitis so wouldn't endometriosis also qualify?

I've also read that women are mostly affected when it comes to Degenerative scoliosis and haven't gotten to the bottom of the reason why on that one, I suspect pregnancy, giving birth, as probably some reasons (just speculating).

But in my mind I wonder is it the damage of the back that is causing the endometriosis as well, or if the endometriosis is causing the back damage.

Or are they in fact seperate issues.

More importantly can the damage be undone.

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I believe that both are related. The pelvic area is very busy and if you add endo and cysts into the mix then that just adds pressure on surrounding organs and structures. I should also think that removing the uterus would cause other organs to move around and get out of place thereby pulling on ligament or muscles.

I recommend that you find an endo specialist (not a general gynaecologist)on the bsge website and tell your GP which one you want to be referred to. They are generally, but not always, better than a normal gynae when it comes to the complex condition of endo. Any further surgery would probably clear up the back issues. In the interim, an osteopath might help you with your back but make sure they are good.

I am also very close to menopause and have endo cysts on my ovaries and a lot more besides.

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Thanks for the support Brownlow, Unfortunately I'm not in the UK, my son is but we are Canadian. I know healthunlocked is a UK based forum but it is the most informative and largest community I have come to find. We don't have Gynocologists here that specialize in Endometriosis per say so our OBGYN/ Gynocologists do the laporscopic surgeries. It's been 11 years since my last op when i had a hysterctomy but that was in my home province I have moved since then. Tomorrow is the day I meet with the surgeon for the first time, I'm a little nervous always felt it intimidating, like Dorothy finally getting to the Wizard!

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Good luck with your appointment tomorrow and your future treatment. I hope you get a good gynaecologist. They do exist! x

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I just wanted to add that my GP referred me to the osteopath.

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hi I have endo on my sciatic nerves and it is agony I am on high doses of pain relief and use crutches to mobilise. I also have a wheelchair for the long days out or the very bad days - I find if you get it diagnosed and you are given the proper pain meds it can be improved so that your quality of life isn't to greatly affected. I am one of these who isn't patient patient and really hate relying on people for stuff so once I found out I had to use crutches I invested in a backpack with nice padded back and straps so that it doesn't hurt my back or shoulders just do I can still get out to do the shopping . if you get told it is impossible that it can be in ur hips don't listen to them as I am proof that it can. it took me ova a year and a lap to get the doc to believe me my gyne was the one who said that because of the nature of my pain it was probably endo on my sciatic nerve and did a lap and sure enough I had the result I needed to get adequate pain meds of gp and support and mobility aids so I could get about . so keep persevering and shout if you want any more info or want to talk at all . good luck x

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Thank you spammie85, for (oh there's a word I'm trying to think of but it won't come) but I feel validated knowing with what you just taught me. I didn't read anywhere about endometriosis being on the sciatic nerves. And oddly the thought hadn't even entered my mind. I did consider the nerves being irritated by the inflammation but this makes even more sense.Ei yi yi what a horrid illness! it keeps taking and taking and taking.I take it spammies85 that you didn't get the relief you were hoping for from your lap. Have you found the meds to do anything in reducing the pain? If I may ask what were they? Are they still working with you to come up with a solution?

Thanks muchly,

givemeananswer x

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I am on a concoction of oramorph and amitriptyline and codeine . There isn't a cure for it so it just a case of removing what they can when they can. nah the lap never worked for me I am just accepting this as the norm now for me

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Have you considered an MRI to see if there is bursitis present, maybe some flouroscopic guided corticosteroid injections may give some pain relief if that is the case. I know they discovered with my pelvic MRI that I had bursitis but I got blind injections that didn't do anything. I also got the flouroscopic injection in my SI joint for what my physiotherapist diagnosed as SI joint dysfunction, that was supposed to help too but it didn't either. So sorry for your pain spammie85 another thing we have in common I see is that you had a hysterectomy, mine was due to adenomyosis, was yours as well? May I ask how old you were when you had your uterus, tube and ovary out?

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Did they excise the endo they saw on your sciatic nerves spammie85?

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I have had an mri and am waiting to see consultant for results yes they removed what they could of my endo. I had total hysterectomy when I was 28 . They didn't find out I had adenmyosis until after the hysterectomy. I only had hysterectomy in march so not been without it that long yet.

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Hi Princessm,

did you find an answer for these pains? I have the exact same pains.. :( I had 2 laparoscopy in a year. x

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