recently had a laprosocopy and told i have server endo.

[chloec]

im 24 and just been told i have server endo.im desperate to get pregnant and have been told i need to go on medecation for 6months they couldnt do alot with my laprosocopy as it would have damaged me to much. just wondered what everone else's story was. HELP ME!!!

[sk291]

Hi chloec, so sorry you've been diagnosed with endo. My story in a nutshell- problems from age17 approx, pillar to post with symptoms and eventually diagnosed at 34. Laser treatment on stage 4 growths and a drug called Danazol for 6 months, growths still present and Danazol repeated but severe side effects so no more drug treatment. Pain much better after all that but symptoms eventually returned BUT fell pregnant and had a daughter 19 years ago.

It is a difficult time and I know it's not always possible but there can be light at the end of the tunnel. IVF is also an option, talk to your doctors about your options and good luck. x

[Hidden]

Hi chloec hope u are baring up ok and being supported by those around u although it's difficult for loved ones too, my story basically is that I've experienced endo pain/problems since I was 14 at 15 I was put on the pill and was advised my symptoms were normal due to hormones I had symptoms on and off for years and kept getting told I was having adverse reactions to my pill and they kept swapping and changing me and told me they just had to find the right one in 2011 my symptoms dramatically changed they became a million times worse my periods were so heavy I was flooding and collapsing I had abdominal pain everyday severe pain during sex and I finally went to docs end of October 2011 and only reason they listened was because I told them ovarian cancer runs in my family I was rushed in for a scan to rule out cancer after tests they finally referred me to gynea I 1st met my gynea jan 2012 and was initially put on a special pill even though he didn't truly know what was wrong then April 2012 due to no change I had a lap procedure I was told I had severe endo completely covering inside and outside of womb, all around my bladder and bowel and it was extremely built up so much so he couldn't remove any of it his solution was hysterectomy I was 22 years old and newly wed of 6months!! It shattered our world I left hospital told there was nothing they could do for me and to continue taking pain killers I eventually asked for a new consultant and in oct 2012 I had a coil fitted and due to the fact this wasn't doing much in March 2013 I was put on 6 months of zoladex which is a menopause treatment had a check up afterwards and was told to see how everything settled down but my daily pain is slowly creeping back so I think it's failed a possible 2nd lap may need to be done but not looking great for me on the baby side of things but have been advised despite having a condition I have to try naturally for a year but they can't recommend that until I'm in less pain so it's catch 22 and I have a less than 3% chance of conceiving and time isn't on my side as it's obviously spreading I'm now 24 but I'm still going and still fighting I have bad days and very sad days but being a young woman with this condition is hard so I understand if u ever need to talk or have further questions please feel free hope I've made sense

What treatment are u on? Xx